James Coyne “lays waste” to PACE trial in Edinburgh
Sasha summarises Professor James Coyne's recent no-holds-barred talk on the PACE trial and points you to the slides, video, audio and transcript.
Discuss the article on the Forums.

How much time was given?

Discussion in 'Institute of Medicine (IOM) Government Contract' started by Andrew, Jan 31, 2014.

  1. Andrew

    Andrew Senior Member

    Messages:
    2,139
    Likes:
    2,018
    Los Angeles, USA
    The contract said patients should have at least one day. How many patients spoke, and how much time was allowed for each? Three minutes? What about "advocates."
     
  2. justinreilly

    justinreilly Senior Member

    Messages:
    2,496
    Likes:
    1,212
    NYC (& RI)
    Patients got three minutes. The IoM-selected orgs and Jennie got 7 minutes.
     
  3. Andrew

    Andrew Senior Member

    Messages:
    2,139
    Likes:
    2,018
    Los Angeles, USA
    Do we know how many patients and how many groups there were?
     
  4. WillowJ

    WillowJ คภภเє ɠรค๓թєl

    Messages:
    3,763
    Likes:
    4,831
    WA, USA
  5. justinreilly

    justinreilly Senior Member

    Messages:
    2,496
    Likes:
    1,212
    NYC (& RI)
    Thanks, Willow! I was too exhausted to look for it.
     
    WillowJ likes this.
  6. Andrew

    Andrew Senior Member

    Messages:
    2,139
    Likes:
    2,018
    Los Angeles, USA
    I think Eileen Holderman an extra slot donated by another patient. So keeping that in mind, patients and advocates were given two hours to speak. So does this count as "at least one day."
     
  7. justinreilly

    justinreilly Senior Member

    Messages:
    2,496
    Likes:
    1,212
    NYC (& RI)
    The Statement of Work didn't mandate at least one day. They haven't heard from the subject-matter experts yet though.

    "During one or more public meetings, the Committee shall consider the testimony of ME/CFS patients, caregivers, and advocacy groups in addition to relevant subject-matter experts such as clinicians, researchers, service providers, and public health officials."

    https://dl.dropboxusercontent.com/u/57025850/MECFS IOM SOW.pdf
     

See more popular forum discussions.

Share This Page