I am sorry you are so severely ill. That does not make you an expert on the illness. Even if everyone with severe ME truly believe they have something different that does not make it so. We are all ignorant until the research and biomarkers sort us out. There is a range of severity in MS. Some have relapsing/remitting illness, some recover completely, some live with chronic illness and some get progressively worse and die. Doesn't make it a different illness.