It's been 25 years for me. Came down with it in 89 and I have never had remission, gotten better, etc. How many others have been ill to where they can't work, haven't had a remission, etc? Also, I would like to know how many have seriously not gotten better only to go downhill again. How many have been consistently ill for over 25 years. Curious. As years have gone on, more and more diagnosis' including Fibro, Endo, IC, CVID, a murmur and now Sjogrens. It just keeps going on and on.