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How Low Does Your Blood Pressure Go?

Discussion in 'Autonomic, Cardiovascular, and Respiratory' started by Machair, Aug 3, 2011.

?

Do You Have Low Blood Pressure Since Getting ME/CFS?

  1. Yes

    13 vote(s)
    81.3%
  2. No

    3 vote(s)
    18.8%
  1. Machair

    Machair

    Messages:
    64
    Likes:
    7
    Chelmsford, England
    Having low blood pressure is something I have got used to since getting CFS 15 years ago. The mornings are the worst -80/63 this morning and I also have NMH which causes even lower readings when I stand. I do all the usual things to bring it up like salt and fluids but just wonder how many others have very low blood pressure associated with CFS?
  2. justy

    justy Senior Member

    Messages:
    2,415
    Likes:
    2,194
    U.K
    Hi Machair. i have had low blood pressure most of my life -but then ive also had M.E for most of my adult life! I dont have NMH etc but when i was pregnant my blood pressure would drop to 100/50. its usually 110/60 which is low but normal low.
    I know that meditation lowers blood pressure and after i meditate i have to get up very very slowly as i get whooshing and pounding in my ears and get dizzy for a bit after. Not sure if this is a side effect of meditation that i need!
  3. 3CFIDS@ourhouse

    3CFIDS@ourhouse still me

    Messages:
    124
    Likes:
    10
    Southeast US
    I think most of us do and it seems that low blood volume and low anti-diuretic hormone are part of the problem. When I feel the worst, my bp is the lowest. Sometimes it's been as low as 79/46.
  4. Cali

    Cali

    Messages:
    6
    Likes:
    0
    Mine tends to hover in the 80's on a "typical" day, though the variation from hour to hour even can be pretty extreme. The highest I can seem to get it in my best moments is around 100. It was 79/55 a couple of days ago, 73/61 a week or two ago. Used to be 120/80 every single time somebody measured it before crashing out with CFS. ...And yet, some doctors are still trying to tell me that it must be normal for me. ARGH!

    By the way, sorry for not introducing myself properly. Will try when I'm able - just am really not well right now and typing is a big deal. Need this outlet, though. :)
  5. Deatheye

    Deatheye Senior Member

    Messages:
    160
    Likes:
    18
    I got more problems with to high blood presure. Still no answer what I got.
    Highest was around 260/240 blood pressure and 130 puls while sitting.
    Sometimes my puls drops below 70 and I'm getting extremmly tiered. lowest was 50.
  6. Carola

    Carola

    Messages:
    30
    Likes:
    6
    Pre-ME/CFS my lowest readings were right around 115/70, though readings were often higher. Now readings are right around 100/60.
  7. TinyT

    TinyT Senior Member

    Messages:
    149
    Likes:
    1
    Australia
    Pre- relapse 'normal' BP for me was 110/60 in sitting.

    Now my morning BP is about 85/55 (bad day) or 95/58 (good day). I can manage to get it up to 100/60 on a good day with lots of fluid & salt by the nighttime.

    My BP seems to fluctuate very quickly with postural change too.
  8. Machair

    Machair

    Messages:
    64
    Likes:
    7
    Chelmsford, England
    Tes TinyT this describes me completely. A bad day starts with lower pressures and I can raise my BP as you do with fluids and salt during the day.This low BP causes headaches and lots of other symptoms and is at the heart of what makes me feel so ill. I agree too that it also fluctuates abnormally with postural change.

    I also find Clif Shot powder, Nuun Tablets or Vita Coco (coconut water) all raise BP a little, and are worth trying especially in hot weather. I don't know if you can buy these in Australia, but all are available in the US, and in the UK the first two are available from Amazon and other places such as Waitrose and Holland and Barrett stock the coconut water.

    Thank you to everyone who has replied so far- it is appreciated so much. xxx
  9. Valentijn

    Valentijn Activity Level: 3

    Messages:
    5,943
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    8,110
    Amersfoort, Netherlands
    My problem is more a low (narrow) pulse pressure. Usually drops under 18 when standing, though can't tell exactly how low since it can't pick up my pulse anymore when it's that low.
  10. Tulip

    Tulip Guest

    Messages:
    437
    Likes:
    7
    I have had low blood pressure problems since I was a child, years before coming down with ME at 18. I was constantly fainting, but it became chronic when I turned 16.

    Makes you wonder about the whole heart theory and ME and if we were all destined to get ME.
  11. alex3619

    alex3619 Senior Member

    Messages:
    6,854
    Likes:
    10,459
    Logan, Queensland, Australia
    Hi, I answered NO to the poll question but its more complicated than that. I have high bp not low, but I also have NMH. I have passed out a lot on stairs or standing up at various times, particularly when I am tired. During my tilt table test, by blood pressure hit ZERO (not sure of this, foggy memory) - my heart had stopped. Bye, Alex
  12. taniaaust1

    taniaaust1 Senior Member

    Messages:
    7,742
    Likes:
    4,613
    Sth Australia
    I couldnt answer the poll as I had low blood pressure since a child (long before I got ME), I used to have faints if I stood too fast due to the low BP.
    Now that Ive got ME.. my BP swings between 156/138 and 80/58 (without BP meds). One elderly ME/CFS specialist/endocrinolgist told me Ive got the most dysregulated BP he's ever seen.
  13. Machair

    Machair

    Messages:
    64
    Likes:
    7
    Chelmsford, England
    Yes Valentijn- I have the narrow pulse pressure you describe when I stand up too, and also have the inability to tell how low as the machine can't register it either.

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