Are you still seeing Dantini, or have you found someone else? If you have, please feel free to share here or on a private message =)
In my first (and only) appt with Dantini he told me that he had a 98% success rate. That triggered some huge red flags, because if there was any doctor who could cure that many CFS patients, his name would have been all over this board.
Neither I nor my husband are seeing Dantini (or any other 'CFS doctor' anymore. At this point, based on both our experiences and from what we've read of others' experiences, we decided not to waste our time and money on "CFS specialists" because I honestly don't believe they can help most people. I think there are a select few people who they can help (for example, people who have legitimate underlying infections, but I don't believe that's everyone and I no longer believe it applies to us). So we've embarked on our own journey which involves a lot of N=1 experiments with out of the box stuff. (Obviously taking as many precautions as possible, and getting bloodwork done to keep tabs on what's happening). We're pretty sure that if there is a cure, it's up to us to find it. If we ever do find something that works, everyone here will know about it!
I'm actually about to start an immune-modulating medication for a different health issue that has actually been used in Germany and the Netherlands for 30+ years to treat psoriasis, has a fairly good safety profile, and is generally well-tolerated. The only reason I'm trying it is because I read some research about how it greatly raises glutathione levels, which is something that many CFS folks have issue with. If my experience is a positive one, then my husband plans to take a similar chemical in the form of a supplement that is available on Amazon (which is less likely to have some of the side-effects of the prescription version and is MUCH cheaper, though I think it's a bit less effective). If either of these treatment options seem to be causing improvements, then I'll be sure to post more information about what we're taking specifically and how we responding, but I don't want to jump the gun in case it turns out to be another wash-out like so many of the things we've tried.