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How is paediatric CFS/ME diagnosed & managed by paediatricians? Australian Paediatric Research Study

Discussion in 'Latest ME/CFS Research' started by Dolphin, Jan 4, 2015.

  1. Dolphin

    Dolphin Senior Member

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    (Not open access) http://onlinelibrary.wiley.com/doi/10.1111/jpc.12677/abstract

     
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  2. Dolphin

    Dolphin Senior Member

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    Can't say I found this particularly exciting.

    An annoying thing is what is practised was compared with:
    These are guidelines that are not popular with a lot of patients. They basically take the biopsychosocial view of the illness, recommending CBT and GET, etc.
     
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  3. Dolphin

    Dolphin Senior Member

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    This extract gives an idea where they're coming from:

    They do sort of recommend GET as they say it is recommended in current guidelines in Table 6 when listing therapies (slightly oddly CBT isn't marked as such even though they recommend it a few times in the text). "Diet changes/nutritional advice" and "Bed rest" are the two other approaches in Table 6 that they report some clinicians used but which are not recommended by current guidelines (they don't recommend them either).
     
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  4. Dolphin

    Dolphin Senior Member

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    They don't really talk about biopsychosocial explanations explicitly but as I say they promote CBT and GET.

    Kathy Rowe (one of the authors) seems to be popular with one or more ME/CFS groups in Australia but I would be concerned if she became too influential esp. in the care of adults. Her approach seems to be mainly about management and CBT-lite. She generally doesn't seem to talk much about physical findings or drugs aimed at dealing with causes. A lot of children get better anyway if they get diagnosed and are not pushed too hard which is probably why her results are reasonable. However, I imagine the same approach would be far less effective e.g. one would see far fewer people getting back to good functioning with adults.
     
    Last edited: Jan 4, 2015
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  5. Helen

    Helen Senior Member

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  6. Denise

    Denise Senior Member

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    Thank you for digging into this for us!
    At the IACFS/ME conference in March 2014, they spoke about this study:
    http://www.iacfsme.org/DesktopModules/DigitalDownload/2014Syllabus25.pdf
     

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