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Nitric oxide and its possible implication in ME/CFS (Part 2 of 2)
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How-I-Recovered-From-CFS-part 2

Discussion in 'General ME/CFS Discussion' started by Radio, Mar 3, 2014.

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  1. Cheesus

    Cheesus Senior Member

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    There seems to be a lot of great information here. However, I do not have the energy or mental capacity to work through it for myself. Can anyone point me in the direction of a very good practitioner who can guide me through all of this and who will work via skype/email?

    Interestingly, the thing that caused me to become very ill and subsequently diagnosed with ME (rather than just years of general unwellness) was a candida diet (and specifically oregano oil). The toxic load ruined me and I have never recovered from it. Does this fit into your theory in any way? It caused me to have very foamy urine and I still get that sometimes.
    Last edited: Mar 17, 2014
  2. Radio

    Radio *****

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    Why do we need sulfate support?



    Radio: We also need sulfate for wound repair that is required for the extracellular matrix.





    Sulfate Support Supplements



    Joint Pain Relief Topical Patch with D-Glucosamine Sulfate and Chondroitin Sulfate Patches
    http://www.amazon.com/gp/product/B00G4EBZAU/ref=oh_details_o03_s00_i00?ie=UTF8&psc=1

    Source Naturals Chondroitin Sulfate 600mg Radio: (I use this as a sublingual)

    http://www.amazon.com/dp/B000GFJJWE...colid=STE6K5DNMJYK&coliid=I687Q658W6S8N&psc=1




    Radio: This concludes my broadcast for now :balanced: Pay it forward and never give up!



    Extracellular matrix

    http://en.wikipedia.org/wiki/Extracellular_matrix

    Could Sulfur Deficiency be a Contributing Factor in Obesity, Heart Disease, Alzheimer'sand Chronic Fatigue Syndrome?

    http://people.csail.mit.edu/seneff/sulfur_obesity_alzheimers_muscle_wasting.html
    Last edited: Mar 21, 2014
  3. ahmo

    ahmo Senior Member

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    @Cheesus It's critical to have a detox protocol in place, which include things to bind and to help eliminate the toxins we're releasing. Mercifully, my detoxxing has been going smoothly. I'm happy to detail what I've been using, but you might be more interested in finding a practitioner. After a year of going very slowly, I added frequnt coffee enemas, which has been a great help. I'm linking to a couple resources about coffee enemas. I'm also linking a vid I've just watched from Dr. Dietrich Klinghardt. He'w working w/ autism and Lyme disease. His work suggests Lume is not just tick-borne, but congenital. And he calls such illnesses as MS, Parkinson's, ALS 'adult autism'. He talks about his treatment: Detox; detox; detox; eliminate EMFs. I found this lecture illuminating. Best wishes, ahmo

    http://www.mygutsy.com/the-ultimate-liver-detox-coffee-enemas/
    http://www.sawilsons.com/library.htm
    Klinghardt: Pyroluria, Autism, Lyme http://www.youtube.com/watch?feature=player_detailpage&v=-z3kRDYcvhA
    Klinghardt. Pyroluria doc: http://www.klinghardtacademy.com/images/stories/powerpoints/hpu 2009.pdf
    Radio likes this.
  4. Radio

    Radio *****

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    Yes, I think you would benefited from researching lipid replacement therapy and The 7 Key to my Recovery. Also, I would consider doing some comprehensive testing on your kidney function.
  5. South

    South Senior Member

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    You may have killed off too many of your good bacteria with the oregano. I blame oregano oil for a worsening of my digestive health, after having used it for too long without making an effort to replenish the good bacteria. Still floundering around after that, unfortunately.
  6. Aerose91

    Aerose91 Senior Member

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    @Cheesus

    For what it's worth, as horrible as your symptoms must be Ithink you are in the best situation to recover fully. You know what the tipping point was for you and all signs point toward excess toxicity and a poor digestive tract. I bet if you do the correct protocols to address and fix these you will make a full recovery. Pretty much everyone I've seen in a situation like yours is capable of recovering fully once they find they formula out. Best of luck to you! Where r u located btw?
  7. Cheesus

    Cheesus Senior Member

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    Ive just seen these responses. Sorry for the late reply!

    @South Ironically I don't even have any gut symptoms! Though I am certain that there is still likely a dysbiosis due to my reaction to probiotics and antifungals.

    @Radio I have finally found a functional medicine practitioner who I think looks really good (is also a fully licensed MD with 30 years practice). The only issue is that I won't see her until at least July and she is 100 miles from my home so it will be a huge undertaking. In the meantime I am going to do what I can by myself, so that means:

    Lipds
    Myhill's mitochondria supplement package
    Chris Kresser's Paleo diet
    Infrared sauna (when I am well enough to withstand the heat as I am not currently)
    Meditation (improves mitochondrial gene efficiency (and happiness))
    The Perrin Technique (lymph drainage to get rid of toxins).

    @Aerose91 Thanks very much for the encouragement. I can really use it right now as I am finding it difficult getting out of bed! Just need to wait on the IFM doctor.
    Radio likes this.
  8. Cheesus

    Cheesus Senior Member

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    @Radio regarding my above list, do you think it might be worth adding NAC in there for detox purposes?
  9. Radio

    Radio *****

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    (Private Conversation)
  10. Cheesus

    Cheesus Senior Member

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    @Aerose91 Also, I am located in the North East of England.

    @Radio I have sent you a PM.
  11. kyzcreig

    kyzcreig

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    Great write up Radio. I have a similar experience as you - fatigue in my early 20s followed by MCS. Only recently I've made progress with MCS and fatigue (ONOO Pall protocol and Mercury chelation) but I still react to many foods, which precipitates all my other symptoms. I suspect dysbiosis due to liberal antibiotic use was the root cause. Would you say you've cured yourself 100%?

    Has anyone else had success following the protocols advocated in here?
  12. Radio

    Radio *****

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    Hey Kyzcreig,

    I still have metabolic FM damage. But, I have resolved my CFS. I'm not advocating anyone try my protocol, I'm just telling my story and posting related information to help forum members see recovery is possible. Please read some of the new info I have posted here: http://forums.phoenixrising.me/index.php?threads/how-i-recovered-from-cfs.27280/page-10
  13. kyzcreig

    kyzcreig

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    That's good to hear. What are the repercussions of metabolic FM damage? Lower energy?

    Edit: I don't have a problem with energy levels per se, at least not since I started using Pall's ONOO protocol. My main problem is with MCS/gut reactions now. Do you think Methylation/B12 deficiency is worth investigating? Are there any diagnostics for it? Curiouslly Freddd's protocol suggests avoiding glutathione - (topical and IV) glutathione seems to be the only thing that cures my ails. That and vitamin C.

    Also thank you for writing all of this. It is wonderful that those of us with success share their experiences for the benefit of all.
    Last edited: Apr 25, 2014
  14. Radio

    Radio *****

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    I have mild nerve damage, muscular pain and restricted blood flow. I have repaired my mitochondria to the point that low energy is no longer a problem. But, If you want to get technical FM is low energy on the cellular level. If i eat a super clean diet and support the 7 keys to my recovery, I can control FM symptoms.
  15. Kina

    Kina Moderation Team Lead

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    There really isn't any evidence that conclusively has proven FM is a 'progressive mitochondrial disorder' -- do you have evidence of this. There really isn't any evidence that FM can be ameliorated by diet -- please provide studies.

    Thanks.
  16. Radio

    Radio *****

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    Hello Kina,

    "Progressive mitochondrial disorder" is more of a genetic terminology. I agree with you about FM not being a genetic mitochondria disorder. We are talking about acquired mitochondrial damage from metabolic imbalances related to dysbiosis. There are many other contributing factors such as mercury, viral infections and environmental toxins to consider as well.


    Please Review Dr Vasquez's textbooks and peer reviewed biomedical journals. Unfortunately you would need to buy the textbooks see the most of his research.



    http://www.amazon.com/Fibromyalgia-Nutshell-Effective-Functional-Medicine/dp/1475121253


    A program consisting of a phytonutrient-rich medical food and an elimination diet ameliorated fibromyalgia symptoms and promoted toxic-element detoxification in a pilot trial.http://www.ncbi.nlm.nih.gov/pubmed/21717823
    Oxidative stress and mitochondrial dysfunction in fibromyalgia.
    http://www.ncbi.nlm.nih.gov/pubmed/20424583
    Mitochondrial myopathy presenting as fibromyalgia: a case report
    http://www.jmedicalcasereports.com/content/6/1/55
    Energy Makers Eroding in Fibromyalgia
    http://www.fmnetnews.com/latest-news/energy-makers-eroding-in-fibromyalgia
    Vegan diet alleviates fibromyalgia symptoms.
    http://www.ncbi.nlm.nih.gov/pubmed/11093597
    Relief of fibromyalgia symptoms following discontinuation of dietary excitotoxins.
    http://www.ncbi.nlm.nih.gov/pubmed/11408989
    Clinical impact of a gluten-free diet on health-related quality of life in seven fibromyalgia syndrome patients with associated celiac disease
    http://www.biomedcentral.com/1471-230X/13/157
    The use of D-ribose in chronic fatigue syndrome and fibromyalgia: a pilot study.
    http://www.ncbi.nlm.nih.gov/pubmed/17109576
    Dr Myhill on Fibromyalgia and Mitochondrial Dysfunction
    http://www.prohealth.com/library/showarticle.cfm?libid=16720
    A link between irritable bowel syndrome and fibromyalgia may be related to findings on lactulose breath testing
    http://ard.bmj.com/content/63/4/450.full
    Fermentation in the gut and CFS
    http://www.drmyhill.co.uk/wiki/Fermentation_in_the_gut_and_CFS
    Free radicals, antioxidants and functional foods: Impact on human health
    http://www.ncbi.nlm.nih.gov/pmc/articles/PMC3249911/
    Last edited: Apr 25, 2014
  17. Kina

    Kina Moderation Team Lead

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    This isn't proof. Studies, research please.
  18. Radio

    Radio *****

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    I'm sorry I can not help you more...
    Last edited: Apr 25, 2014
  19. Kina

    Kina Moderation Team Lead

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    Why, you seem to have all the answers.
  20. tdog333

    tdog333 Senior Member

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    Most of the research he posted was from academic journals.
    Radio likes this.
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