The hummingbirds foundation for ME who base their research on some of the leading facts in relation to the disease actually class CFS and ME as separate they describe CFS as being quote "a waste basket diagnosis" as in its a diagnosis of the undiagnosed.
Now I assume what they mean is a lot of people that have "diagnosed" CFS which nobody truly knows the cause of most likely have other undiagnosed treatable conditions that mimics most of the symptoms of CFS.This would explain why many people on PR have similar yet differing symptoms ,and treatments or supplements that help some don't help others ,moreover I highlight the fact that even in the Rituximab trial not everyone responsed ,which would imply some peoples so called CFS is autoimmune and some others may have a different mechanism at play.If I had accepted my doctors waste basket diagnosis I would never have found out the reality,and been able to improve rapidly.
"The primary diagnostic criterion for M.E. is acquired CNS change. We have excellent tools for measuring these physiological and neuropsychological changes: SPECT, xenon SPECT, PET and neuropsychological testing.
CFS patients may not have any of these
findings...." Dr Byron Hyde, Hummingbird Foundation.
I wonder if there are any CFS/ME patients who've managed to get ANY of these tests done? Would a finding of "acquired CNS change" make you stop seeking underlying causes?
How does he help patients? He suspects a viral cause for this "ME" he defines, even tbough in that video it rubbishes the notion! WTF?
Their list of possible symptoms is huge - and almost identical to whats put down to CFS and Fibromyalgia anyway! Kudos to them for going for legitimacy by finding scans that show physical proof, and to Dr Hyde for hunting deeper for underlying medical complaints in patients.
But the name change wouldn't change much for most of us. We need to hunt, push, and invest in testing for ourselves. After 9 years of listening to mainstream doctor crap, your story
@Shawn has spurred me to action!
I hope it all works out for you, and you enjoy bring home and looked after.