1. Patients launch $1.27 million crowdfunding campaign for ME/CFS gut microbiome study.
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Lessons from ME/CFS: Finding Meaning in the Suffering
If you're aware of my previous articles here at Phoenix Rising then it's pretty clear that I don't generally spend my time musing upon the philosophy of the disease. I find it better to spend my time reading research and trying my best to break it down to its core elements and write...
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How do you spread Awareness about Mitochondrial Disease?

Discussion in 'Action Alerts and Advocacy' started by ggingues, Jul 21, 2011.

  1. ggingues

    ggingues $10 gift code at iHerb GAS343 of $40

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    Concord, NH
    This information made possible by the generous support from GeneDX.

    NEWS FROM THE UMDF

    To celebrate "Awareness Week," the UMDF is sponsoring a video contest. We are asking people to create a two minute video that shows us how they spread awareness about mitochondrial disease. Get creative!!! All submitted video's will be posted on the UMDF Facebook page, ( http://www.facebook.com/pages/Unite...-Foundation/202570833099467?tr=y&auid=8683473 ) where people will be encouraged to 'like' their favorite video. The five video's with the most 'likes' will be entered into the final round of judging by a panel selected by the UMDF. Click here for the offical video contest rules and instructions. http://www.umdf.org/site/c.otJVJ7MM...pread_Awareness_Contest.htm?tr=y&auid=8681601

    The grand prize winner will recieve an IPad. The second place winner will recieve an IPod, and the third place winner will recieve $100 in UMDF Merchandise. All entries must be recieved by August 31, 2011. Winners will be announced starting September 19, 2011.

    Awareness Week - September 18-24th
    In the coming weeks, we will be e-mailing information to you about the awareness week materials we have available, upcoming Energy for Life Walkathons, and other participation ideas. New this year is our partnership with similar groups in a 'Global Mitochondrial Disease Awareness' effort. You can see the website we have all developed by clicking here. ( http://www.gmdaw.org/?tr=y&auid=8683563 )We will also be partnering in our first ever "Stay in Bed Day." Watch for email, Facebook, and Twitter for details on all of these events.
  2. ggingues

    ggingues $10 gift code at iHerb GAS343 of $40

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    Concord, NH
    I thought I would pass this email along, I thought it might provide some ideas for our super advocates!

    GG

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