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    Created in 2008, Phoenix Rising is the largest and oldest forum dedicated to furthering the understanding of and finding treatments for complex chronic illnesses such as chronic fatigue syndrome (ME/CFS), fibromyalgia (FM), long COVID, postural orthostatic tachycardia syndrome (POTS), mast cell activation syndrome (MCAS), and allied diseases.

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How do you cope with being Unreliable?

Hanna

Senior Member
Messages
717
Location
Jerusalem, Israel
Same scenario for me, had to rush because of POTS and collapsed exhausted in the street/mall several times. And now, I am so afraid of this that shopping is a no-no. Definitly, feeling that you can't rely on your body for very basic occupation is so distressing!
And thank you again Valentijn for having expressed it in a very simple and accurate way.