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How do we get Dr Nigel Speight's petition restored?

Discussion in 'Action Alerts and Advocacy' started by Countrygirl, Apr 29, 2016.

  1. Countrygirl

    Countrygirl Senior Member

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    I read a few hours ago on PR that someone claimed that Dr Nigel has requested that the petition be taken down. I just want to reassure everyone that this is not true, but the petition is already locked if not actually removed.

    Dr NS and others emailed me an hour ago to ask why the petition is now unavailable. He is perfectly happy with it and the rumour that has been spread is false.

    It would be good to see the petition restored.

    Best wishes,

    CG.
     
    MeSci and Invisible Woman like this.
  2. Chrisb

    Chrisb Senior Member

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    Dirty Trix been at work again?
     
  3. Countrygirl

    Countrygirl Senior Member

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    @Chrisb Ummmmm! Quite!.......or it could be an innocent misunderstanding............ and there again................
     
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  4. Invisible Woman

    Invisible Woman Senior Member

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    I was about to sign it when I read the post that we had been asked not to so I didn't......

    As you say a misunderstanding ... or a new low...
     
  5. Sasha

    Sasha Fine, thank you

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    This certainly hasn't been dirty tricks. It was taken down because of what Dr Speight himself had said about not wanting a petition:


    @Countrygirl, please give @JaimeS time to wake up in the US so that she can see your new information from Dr Speight. :)
     
    Last edited: Apr 29, 2016
  6. tinacarroll27

    tinacarroll27 Senior Member

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    I want to apologies to Dr Speight, #MEaction and everyone who signed the petition. I was the one who put the petition up and I didn't realise It was still involved in legal action and I should have realised. Apologies for any worry I might have caused with the petition to Dr Speight, it was never my intention. My actions came from a desire to help. I apologies to #MEaction for wasting their time and I apologies to everyone else who signed it for wasting their time. I am new to all of this advocating and I still have a lot to learn. Thank you
     
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  7. Sasha

    Sasha Fine, thank you

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    I'm sure everyone understands that you just wanted to help!

    But as you say, this is all a bit delicate and we need to tread carefully. :thumbsup:
     
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  8. Countrygirl

    Countrygirl Senior Member

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    @tinacarroll27 You have nothing to apologise for and Dr NS is happy with the petition. Why don't you contact him and ask him yourself? He will reassure you. Please may we have it put back up again. If you or MEAction have 'spoken' to him as stated earlier you have his email address.

    Well done for starting it.

    Best wishes,

    CG
     
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  9. JoanDublin

    JoanDublin Senior Member

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    I was one person who was worried about the petition. I know it was done for the best of intentions and now that he is happy for it to stay up, could you reinstate it? If that's not possible could you start another one? I think this was all just confusion from remarks made earlier by an intermediary who said not to do anything unless NS was happy with it. Don't think it was any dirty tricks, just genuine confusion and concern,.
     
  10. Countrygirl

    Countrygirl Senior Member

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    I think everyone is trying to do their best to support Dr NS and are genuinely concerned not to exacerbate the situation. I hope when wires have become uncrossed that the petition will up again before too long.

    Again very well done @tinacarroll27 for taking the initiative.

    Best wishes,

    CG
     
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  11. JoanDublin

    JoanDublin Senior Member

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    And I would like to apologise for my role in the confusion. I was one
    Thanks. I feel bad for my role in the confusion but like you say, it was genuine concern shared by a few people. Can't wait for the petition to start up again! @tinacarroll27
     
  12. Esther12

    Esther12 Senior Member

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    What's going on here?


    Change of mind? Confusion? I don't understand it.
     
  13. Countrygirl

    Countrygirl Senior Member

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    I think it is merely confusion @esther.

    Some while ago, Dr NS made it known that he didn't want a petition to be put up 'yet'. That was before the interim hearing. However, he is perfectly happy for patients to support him now and certainly by this petition.

    I have been in contact with him a number of times today after he tried to see the petition and found it removed and was concerned to know why this has happened. I think people are just anxious not to take any action to inflame the situation and somewhere along the line wires have become crossed.

    Hopefully, it will be restored within the next few hours when people realised that there has been a misunderstanding.
     
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  14. Invisible Woman

    Invisible Woman Senior Member

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    And they call us a small, vocal, organized minority! :)

    Thanks to everyone for all their efforts to get this sorted.

    ETA: 'cause I called us a majority instead of a minority. I am a muppet!
     
    Last edited: Apr 29, 2016
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  15. JoanDublin

    JoanDublin Senior Member

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    Lol! I needed that laugh!
     
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  16. JaimeS

    JaimeS Senior Member

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    I never said that the doctor had requested that particular petition had to be taken down! I stated that the doctor had said to #MEAction that he did not want any petitions or patient intervention. I just sent him a second email asking if that had changed.

    @tinacarroll27 -- thank you! It's really all right. :)

    You guys know me. Unless I've been hanging out for a year pretending to be ill ('malingering'!) this is not some conspiracy. It's us getting our wires crossed. If Dr Speight has changed his mind, we are happy to host the petition, and happy to put one up on #MEAction's main page if we know what he wants us to ask for.

    Another thing I had spoken to the doctor about was what form he wanted our support to take. Hopefully he'll respond soon, and we'll see.

    Thanks to everyone here. Even though this was a bit of a stressful situation, I know that everyone in our community wants to do good, and that's so apparent every time I'm here.

    Jaime
     
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  17. tinacarroll27

    tinacarroll27 Senior Member

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    Thank you. It gets me so upset what has been done to Dr Speight and what has been done to us as well, but we do need to tread carefully like others have said.
     
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  18. JaimeS

    JaimeS Senior Member

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    Here are the exchanges I've had with the doctor himself, as of 10:30 AM EST, 4/29/2016:

    Dr Speight,

    Some PWME are stating that you have said you're happy to have them create petitions on your behalf. We took down a petition yesterday because of the wishes you conveyed earlier. Please let me know if this has changed.

    Thanks,

    Jaime


    He replied,

    I replied,

    So, to clarify, you prefer to avoid petitions and the like? Do I have your permission to quote you on this?

    The community is a bit puzzled right now. We all want so badly to help you, of course. :)


    And he answered,

    From the last response, I removed a few things I thought are best kept private.

    Jaime
     
  19. Chrisb

    Chrisb Senior Member

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    I think he can safely assume we all wish him luck.
     
  20. Countrygirl

    Countrygirl Senior Member

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    I have been away from my computer for a few hours and have returned to see some emails from NS after speaking to his lawyers who have advised that it is not wise to continue with the petition. What a shame as I suspect it would have received a huge response. As ChrisB says, at least he knows we all wish him the very best.

    @JaimeS I am so glad wires have been uncrossed. Everyone is trying to do their best with conflicting information.

    Best wishes,

    CG
     

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