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How decide on next tests to take?

Discussion in 'Diagnostic Guidelines and Laboratory Testing' started by roxie60, Feb 18, 2014.

  1. Sushi

    Sushi Moderator and Senior Member Albuquerque

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    @roxie60

    Have you looked directly at the Infectolab website?

    http://www.infectolab.de/index.php?id=51&L=1&L=1\'

    I don't see the word " Chlamydophila" but these LTT tests are listed:

    - Chlamydia pneumoniae-Elispot-LTT

    - Chlamydia trachomatis-Elispot-LTT

    - Ehrlichia/Anaplasma-Elispot-LTT

    - Yersinia-Elispot-LTT

    - Epstein Barr-Virus (EBV)-Elispot-LTT

    You should be able to choose just the tests you want. As I wrote, the LTT for borrelia is 184 euros. I did the C. Pneumonia both by antibodies and PCR, but not by LTT.

    Infectolab will send results directly to patients, at least they have for everyone I know. I emailed them and got my results overnight. The LTT tests take 2 weeks. I don't know if you can order tests directly from them without a doctor but they would tell you if you emailed them. I think the main difficulty with using Infectolabs from the US is shipping--another thing to ask about.

    I had the Igenex complete co-infections and it missed the Bartonella that was found later by PCR (DNA). Ignenex tests for very a very limited number of strains so that is probably why they missed it. I think they test for 3 Bartonella strains when there are over 30 known.

    Best wishes in making these decisions.
    Sushi
  2. roxie60

    roxie60 Senior Member

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    Thanks @Sushi , I actually sent them an email with many questions early this morning after I found there website. Although what I saw seems a bit different from what you listed so maybe I need to take another look. I really dont know what I'm going to do.

    I notice some places list a Chlamydiophila and I just presumed it was just another name for Chlamydia. I did not think I needed the Chlamydia T.

    I appreciate the info. I just really want to know what is going on inside so I can have more confidence regarding a treatment plan. I just dont understand why I'm feeling slightly better (grateful) but it is so confusing and I feel gun shy expecting the next crash. I just want to be well again, life is hard enough without the added burden of mystery illinesses and all the un associated with that.
  3. Valentijn

    Valentijn Activity Level: 3

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    http://www.melisa.org/metals-disease/diseases/borrelialyme-disease looks like it offers it, though you probably need to contact them directly to figure out how to order it.
  4. Valentijn

    Valentijn Activity Level: 3

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    They didn't send me my results when I asked them to - they insisted I get them from my doctor instead. Maybe it makes a difference if it's a more local doctor ordering the test, or if the Lyme results are positive.
  5. roxie60

    roxie60 Senior Member

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  6. Sushi

    Sushi Moderator and Senior Member Albuquerque

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    Who knows! Or maybe they have just changed their policy. A few other members here who had positive results got them directly by email but it was some months ago.

    Sushi
    Valentijn likes this.
  7. SickOfSickness

    SickOfSickness Senior Member

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    If I am remembering right, you can't get real test results if you've had antibiotics recently. I mean what if the antibiotics lowered the levels in your system so you show up below the cutoffs, and don't get diagnosed? You may need to wait.

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