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How can i stop brain demyelination?

Discussion in 'XMRV Testing, Treatment and Transmission' started by roma, Nov 20, 2010.

  1. roma

    roma

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    is there anything i can do to stop brain demyelination for the last 4 days my brain has been feeling demyelinated this is thought to happen when you have a viral invasion in the brain(which i know i have)which results in having cytokines in your brain to fight the virus resulting in a never ending battle which of course turns in autoimmune because you can't flush the virus out of the brain and the cytokines are always there to fight the virus which results in brain demyelination and brain lesions as seen in MRI's, my question is this, is there anything i can do to try to stop this? i have noticed in these last 4 days that my toes are also getting numb and my left eye feels really funny like it's getting numb as well it's very scary these are typical symptoms of peripheral neuropathy, if you guys know of something that works please lemme know asap...so i can try to stop it..a virus like herpes will cause brain encephalitis which can be fatal some times and it may cause demyealination too, but this isn't herpes i am almost 100% sure is XMRV....
  2. Jemal

    Jemal Senior Member

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    Try taking large amounts of B12... I know it has greatly recuded my brain fog. Also, when the body runs out of B12, it can cause demyelination. So taking extra B12 might combat this process. You can't really overdose on B12, so it's pretty safe. I have been taking 400.000% of the recommended dose of B12 daily for more than 9 months. The excess B12 leaves the body through urine, so it shouldn't build up, like Vitamin D for example (which can be toxic and even deadly when you take overdoses for a few months).
    I am taking pills that contain 400.000% of the recommended dose that are sold in stores here in the Netherlands. So the general opinion is that it's safe (many other vitamins, supplements or drugs are strictly regulated over here).

    One warning: don't take too much B12 when you have a history of cancer. B12 is thought to help cells replicate and if you have cancer this might be a bad idea. Don't think there is a lot of hard evidence, but it's best to stay on the safe sides of things.
  3. caledonia

    caledonia

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    Cincinnati, OH, USA
    Fish oil? Essential fatty acids are required by the brain.
  4. August59

    August59 Daughters High School Graduation

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    The previous suggestions are very goods ones and one thing that you might want to add or alternate in is a antioxidant that crosses the BBB to sort of help mop things up. Alpha Lipoic Acid (ALA) is the one that jumps in my head as the first choice. Might not be the best choice if you have heavy metal levels as there are some concerns about possible re-distribution.

    Hate to keep throwing things at you, but a combination of ALCAR/ALA would probably be a very good option as well.
  5. roma

    roma

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    hey thanks a lot for your reply im actually taking B12 i take 4 a day and it says 1000mcg or 16667% which would be 66668% and i also take omega3 fish oil about 4000mg a day and it did help ma a lot when i starte dto do this but now it seems like it's either not working anymore or i need to up the dose because im feeling tingling and numbness in my feet which i never felt before, i have noticed as well that i need to sleep very well otherwise the next day i will have a headache for sure lasting all day..any other ideas would be apreciatted thank ou..
  6. roma

    roma

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    hey Caledonia im already taking sigh oil about 4000mg it does seem to help but not quite where i want it...thank you for your reply
  7. roma

    roma

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  8. redo

    redo Senior Member

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    Do you have MRi's showing brain demyelination?

    The only thing I know to stop it is the monoclonal antibody from the Hauser study (a medicine much used in Rheumatoid Arthritis).

    Here is from page two, they did brain scans prior to treatment, when beginning treatment, and into the treatment.

    [​IMG]


    Here are their results. When you asked about stopping new brain lesions from coming. The number of new lesions went straight down (from page nine):

    [​IMG]


    But the patients didn't just stop getting worse. They also begun getting better. Here is the graf of total lesions:

    [​IMG]

    The monoclonal antibody Natalizumab is being used for MS. Rituximab is in phase II. Some people have got the often lethal PML (I am guessing less than 1:10.000 patients, but I am not sure).

    Rituximab is also being used in small trials for CFS (link). But it's not approved yet for CFS or for MS. If you have rheumatoid arthritis (not responding to other meds) you'd get it, but not with just CFS... Not approved yet (and of course, we don't know if it will be approved).

    But it looks good, the way it can reduce the number of brain lesions shown on the MRI. They had 104 patients in the study, 69 got meds, the rest placebo.

    Attached Files:

  9. roma

    roma

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  10. roma

    roma

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    hey thanks s lot KFG the MRI was taken way before i started taking any vitamins or supplements so i don't think there's a connection there at least in my case..

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