A disease with two faces? Re-naming ME/CFS
Persuasion Smith covers the bases on the misleading and disreputable name for our disease we've all been saddled with ...
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House of Lords debates the PACE Trial | verbatim report and YouTube

Discussion in 'General ME/CFS News' started by Roy S, Feb 13, 2013.

  1. Valentijn

    Valentijn Activity Level: 3

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    Amersfoort, Netherlands
    I think it's a somewhat common and very inappropriate tactic some people use. Basically they state that disagreeing with them is tantamount to discrimination/hate/etc targeted at some sympathetic population. It's specifically been used for a very long time in shutting down opposition to psychological ME/CFS theories.
     
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  2. orion

    orion Senior Member

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    I suspect his views were fixed long before Lady Mar initiated this debate. He comes across as an old school doctor who thinks patients should know their place and not get involved in debates about medical issues. I definitely wouldn't see him as a natural ally.

    I've never warmed to the guy. I find him smug, patronising, and insufferably paternalistic. I watched one of his documentaries a few years ago and he kept talking about what he would or wouldn't "allow" his patient to do, as if the patient didn't have any say in the matter.
     
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  3. maryb

    maryb iherb code TAK122

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    Well said orion.
     
  4. Dolphin

    Dolphin Senior Member

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    For anyone who missed it:
    At nearly 22,000 words (pdf is 35 pages), it's a long, long piece. But contains a lot of interesting information on the PACE Trial and ME/CFS politics, if you haven't read similar documents by Margaret Williams.

    There's a thread on this at: http://forums.phoenixrising.me/inde...ds-grand-committee-on-6th-february-2013.22376
     
  5. Dolphin

    Dolphin Senior Member

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    Peter White:
    from:
    http://www.informationtribunal.gov.uk/DBFiles/Decision/i1069/20130822 Decision EA20130019.pdf
     
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