One of the most frustrating things for me is never knowing how I will be hour to hour or day to day. Like today, I was able to cook this afternoon, but it triggered POTS and now I'm fevered and really, really sick. Cannot move from this bed. Some mornings I will feel like I'm just dying with severe pain and fatigue and a million symptoms. Then by that afternoon, I might be better and be able to do something. Or it's the opposite where I was okay in the morning and by noon or night I am at death's door again. Or I'm sick the entire day and by late at night I'm better and could actually do something but it's too late to go anywhere or do anything. And appointments are hell on me. The stress of not knowing how I will be on that day, at that specific time. It's absolute hell. And of course, most things want you to have a morning appointment. No one gets that we're usually really sick in the morning. But often it doesn't matter cause I can be sick at any time on any given day. It's impossible to ever really make plans or do anything I ever want to do because usually I'm too sick when I want to do whatever it is. It's just so frustrating. And this is the second time this week that I've found my hands and arms are too weak to lift pans when I'm cooking. It's really hard for me. Weak, lightheaded, dizzy when trying to make myself something to eat. Doesn't matter if I sit down alot, still happens.