Hospital Wants Input From Chronic Fatigue Syndrome and Fibromyalgia Patients on Possible NEID Center

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Yup, and fair enough because they presumably want to get some idea of market there. But it would be good news for all of us down the road - if a specialist centre is set up, we can all benefit from what they learn.

If a center like this is financially successful, it will be easier to sell the concept to other hospitals.

Tina

Very easy, simple survey. No tricky or personal questions. Didn't take more than a couple of minutes.

yes, very short.

Now why would we want to trick you? LOL

Tina

Correction. Tina noted that the Clinic in B.C. is "focused on Complex Chronic Diseases (ME/CFS, FM, Lyme Disease).” But if you follow your link, you'll notice that our Clinic instead uses nomenclature consistent with the ICC:

Thank you, Ember.

Tina

yes. Madie, that is true.

Very cool, just filled it out. Thanks so much Tina!!

Been there, done that yesterday. It was simple. It was quick.

One of the questions is if you have to fly to get to a health care provider. They may be wondering how many people beyond the contiguous states might travel that far. I think the more feedback they get, the better.

Did it yesterday too. Bumping it for others to see.

Thanks, we have 524 who have responded. Spread it around, especially to those in the Southeast. I have found that the word "survey" is not popular. Maybe it is better if we say, "Please answer these five simple questions."

People think of surveys as being long with complicated, poorly-written questions.

Remember, the question on how you pay is how you pay for most of those services. Avoid "other" if you can.

Here's the link, if you need it.

http://survey.constantcontact.com/survey/a07e6a230arh6193mcp/start

When you share with others, be sure that you url address you share ends with "start."

Just five questions....very easy to do. Whoever stated a successful center in one state could very well mean successful Centers elsewhere - so wherever you are in the US - please fill out the survey!

This is a breakthrough in its own right. Good news!

Let's hope any new clinic like this allows phone consultations if lab work is in place.

If it opens, they will be busy! That would mean branch centers opening up...

We'll make it work. The question asks which method for most or all. So, if it is equally divided, then I guess "other" is for you.

The "other" will not be in the percentages of each answer. I will have to put an explanation of the "other" answers in my report. The answers that are already provided generate a scale chart of percentages. With 1,000 respondents, I have to go through and figure out all the "other" answers and give an explanation, but they won't show in the scale chart this survey will generate.

Tina