Professor & patients' paper on the solvable biological challenge of ME/CFS: reader-friendly version
Simon McGrath provides a patient-friendly version of a peer-reviewed paper which highlights some of the most promising biomedical research on ME/CFS ...
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Hospital protocol

Discussion in 'General Treatment' started by concepcion, Nov 27, 2014.

  1. concepcion

    concepcion Senior Member

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    Does anyone know of a good (formal) protocol which could be used as a basis for either: 1) educating a hospital on how to deal with an ME/CFS patient; or 2) to set up a specialised ME/CFS ward?
     
  2. Denise

    Denise Senior Member

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    Some of this may depend on the country you are considering this for.
     
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  3. concepcion

    concepcion Senior Member

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    I guess what I'm looking for is something authoritative to take to hospital staff / administrators / ministry of health to lobby for the protocol to be used with a patient, or, even better, to lobby for a specialised ward.
     
  4. Denise

    Denise Senior Member

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    The links here: http://www.njmecfsa.org/anesthesia/ are useful but are only about anesthesia.

    My general thought is that hospitals are not a great place to have to be - whether one has ME or anything else.
    I don't know of a protocol but I hope others have suggestions.
    Sorry I am not more help.
     
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  5. Sushi

    Sushi Senior Member Albuquerque

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    If you are in the US you might want to read this post and contact the author. They were talking about a "Center for Excellence"
    Sushi
     
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  6. concepcion

    concepcion Senior Member

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    Thanks Sushi.
     
  7. concepcion

    concepcion Senior Member

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    Thanks Denise. That's actually a good start.
     
  8. WillowJ

    WillowJ คภภเє ɠรค๓թєl

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    WA, USA
    I believe they have also done the CME in Michigan.

    try pandoraorg.net to contact Pandora

    Some of the regional orgs also work with physician education, such as the New Jersey org mentioned.

    Ryan Pryor 's org is also working on physician education but I think solely via internships (so maybe not predictably helpful for a given hospitalization, but should help over time)
     
    Last edited: Nov 28, 2014
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