Invest in ME Conference 12: First Class in Every Way
OverTheHills wraps up our series of articles on this year's 12th Invest in ME International Conference (IIMEC12) in London with some reflections on her experience as a patient attending the conference for the first time.
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Hornig/Lipkin cytokine study: Foreign language coverage

Discussion in 'General ME/CFS Discussion' started by charles shepherd, Feb 27, 2015.

  1. charles shepherd

    charles shepherd Senior Member

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  2. charles shepherd

    charles shepherd Senior Member

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  3. deleder2k

    deleder2k Senior Member

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    Last edited: Feb 28, 2015
    aimossy and luludji like this.
  4. Cheshire

    Cheshire Senior Member

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  5. Sasha

    Sasha Fine, thank you

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  6. adreno

    adreno PR activist

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  7. Cheshire

    Cheshire Senior Member

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  8. lycaena

    lycaena

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  9. luludji

    luludji

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    And! From! The! Netherlands!.....:

    ....nothing.....

    (neither about the IOM rapport).
     
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  10. Sasha

    Sasha Fine, thank you

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    :hug:
     
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  11. Never Give Up

    Never Give Up Collecting improvements, until there's a cure.

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  12. NK17

    NK17 Senior Member

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    What about Italy???
    Let me check ...
     
  13. Blue

    Blue

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    Last edited: Mar 2, 2015
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  14. Never Give Up

    Never Give Up Collecting improvements, until there's a cure.

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    Wow, now there's a new angle, to me anyway. Anyone ever heard that one before?

    There is so much criticism everywhere, coming from all sides. I guess we shouldn't be surprised. This is not the be all and end of of ME/CFS research. It's a great step forward, but we don't know if these cytokine patterns are unique to ME/CFS patients or common to 28 other diseases. Oops, look there, I just criticized it myself. Dr. Davis once said, "research is a competitive sport." Indeed.
     
  15. Aurator

    Aurator Senior Member

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    In a way I'm not sure that matters overmuch at this stage; what matters, I think, is whether the cytokine patterns are evidence of disease. Is there not universal agreement that they are?
     
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  16. Jammy88

    Jammy88 Senior Member

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    Lol,

    it's funny cuz of course it's a biological disease. Such a long time for such an 'incredible' discovery. …..

    So now please give us antivirals or other proper treatment. Thank you.
     
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  17. lycaena

    lycaena

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  18. alex3619

    alex3619 Senior Member

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    That is one of the huge issues. There are no proper treatments. Decent studies are only now emerging. In a few years I hope to see several treatments. Most treatments so far are essentially off label, and though they might be very successful, or successful in subgroups (e.g. antivirals) these are not generally recognized.

    Most of what we have is stuff we have figured out ourselves, or from doctors who have gone out on a limb to try stuff. I am of course not counting CBT/GET. The quality of that research is so poor (in general) that I now look closely at everything they say ... and keep seeing counterfactuals and fallacies.
     
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  19. peggy-sue

    peggy-sue

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    I'm so suspicious of what's said that I read the title of this thread as;

    "Foreign language coverup".:p
     
    alex3619 likes this.
  20. Jammy88

    Jammy88 Senior Member

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    I know… I was just saying that I want proper treatments asap for the all of us..

    Best
     
    alex3619 likes this.

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