Hormones, Migraines and Pain

[Misfit Toy]

I am not sure anymore about posting. I feel like all I do is come on here and post about how horrible I am. I have never been to where I am right now. Barely holding on and barely getting out. I can't even tell you how long it's been since I have been to a store. Not a grocery store, but a store. A Target, a mall, an anything.

I continue to feel like I am spiraling downward. I don't know how much further down I can go. I am at the bottom.

I was 11 days late for my period and the hell it brought with it I will never forget. I had an occipital migraine. The back of my neck felt like it had a knife in it, or like I was being struck by lightening. I couldn't turn my neck and it ran up over my ear and to the front of my head. I have been in bed for about 8 days now.

When I finally got my period, the migraine dissipated but the neck pain did not. I have stopped sleeping, stopped eating, stopped functioning completely. I thought, it's the period, which is always a nightmare for me, it will go away. But as time goes by, the neck has hurt worse and worse and is now down into my sciatic nerve.

I don't understand. I can't deal with all of these symptoms. This merry go round of one thing to another. I am having night sweats, hot flashes and I become freezing. I can't sleep at all.

After another night of no sleep and the neck in agony, I had to go on prednisone to calm down all of my symptoms. I have gastritis, reflux, knees hurting, legs hurting, everything is hurting and the neck and arm along with sciatica. I can barely walk. All of a sudden, I am itching all over, too and reacting to so many foods. The levy has broken.

I went to the neck doc (orthopedic doc) who assured me I will not have to have surgery. I have a deteriorating disc in C5 C6. I am to have an MRI and have a cortisone shot. I have not had neck pain in awhile. This just came on out of nowhere...with the migraine before period. These periods will be the end of me.

The prednisone is making my heart race. I am too ill for words, but many of you know this feeling.

I don't know what to do about these periods. They are making me so sick and bringing on a barage of symptoms that are more disabling then anything I have ever known.

One of the worst problems is, is that my friends have fallen away since I had surgery. They are gone. I have continued to decline and they have a million answers. Read this book, take colloidal silver, try this, do that. I can't read. I can't pay attention. I am too ill. I can stare at a TV screen. I can look at pictures. I can't laugh. Not now. I am too tired.

Or, they just can't handle what is going on with me, because honestly, there is too much. I can't handle it, why or how can they.

Anyway, there is nothing anyone can say. I just need to write this down. To let it out. My mom told me the other day that I am draining. Yes. That since I had the surgery, I have been draining. I guess I am.

I am to be on prednisone for 2 weeks. I have to stop all supplements and everything. I am too sick to assess.

 

[leela]

Dr Claudia Welch is amazingly helpful with hormonal issues no matter what stage of life you are at.
She has a book on amazon which is far less costly that her online class, so you might want to check it out.
I have personally benefitted enormously from her book and her wise counsel. She is a doctor of TCM and Ayurveda, as well as having a comprehensive knowledge of western women's health science.

http://www.amazon.com/Balance-Your-...d=1427412574&sr=8-1&keywords=dr+claudia+welch

http://drclaudiawelch.com/

Hang in there, Mistfit Toy!

 

[AndyPandy]

So very sorry you are going through this @Misfit Toy

Keep posting, keep venting. We are here for you. I am back in bed again too. Our health problems suck on a gargantuan scale.

Sending you love.

 

[L'engle]

I've had occipital headache though not that severe. It seemed to be when something I took caused too much estrogen in my system. Yours sounds really bad. I hope you can get something that dulls the pain and just lets you sleep!

 

[barbc56]

I just posted an awesome video relating to FM. It's in three parts and the third part deals with neck issues and their possible relationship with pain. Unfortunately, it doesn't really go into treatment details.

http://forums.phoenixrising.me/index.php?threads/awesome-video-on-fibromyalgia.36524/

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

 

[Misfit Toy]

So very sorry you are going through this @Misfit Toy

Keep posting, keep venting. We are here for you. I am back in bed again too. Our health problems suck on a gargantuan scale.

Sending you love.

Andy, that is the perfect way of describing it.

@L'engle -i've had horrible migraines but that was definitely the worst. It's just still lying around. I know my hormones are a mess but I have no idea if it was too much estrogen or what. Horrible. It's now over eyes. Never ends.

 

[L'engle]

@Misfit Toy I can't get out to shops very often either and miss out on that easy freedom of just browsing. Sometimes I browse clothes and stuff on craigslist to kind of duplicate that experience without the physical toll.

 

[SDSue]

I'm sorry you are suffering like this @Misfit Toy. I understand. Early in my disease I had the occipital migraine for months on end and it left me desperate. Like you, there was no relief, no sleep, just agonizing pain along with the gastritis, etc. Days and weeks ran together and it was all a blur. A hellish blur.

I don't know why or how some of that got better, it just did. (Still happens, but not continuously) It may have been the LDN and finally getting my hormones situated, but who knows. I have to believe it will get better for you, too!

Trouble is, with every flare it's terrifying that it won't go away this time. I'm back to bed, too. As @AndyPandy said, this is a one big gargantuan suck fest!

You aren't alone. Unfortunately, there are many of us in this club, and we all have to vent sometimes. Hang in there!!!

 

[Misfit Toy]

@Misfit Toy I can't get out to shops very often either and miss out on that easy freedom of just browsing. Sometimes I browse clothes and stuff on craigslist to kind of duplicate that experience without the physical toll.

L'engle-normally I can shop online. You know you are sick when you have no desire to shop at all. None. My desire for "stuff" died.

 

[Misfit Toy]

@SDSue -they are the worst. Worst pain. So sick from it.

I'm sorry that you suffer from them, too. I really hope to get my hormones situated at some point. I just recently had a saliva test of all my hormones and I have to go to the doctor to find out the results and I hope to go on for progesterone cream again.

I never had a migraine until age 37 on my hormones changed. I never even knew what they really were. I'd heard about them but there is nothing like experiencing them.

 

[South]

I have a history of back-of-the-neck headaches - roughly 6 of them a year. I can comment on another body "chemical" that is related, and a fix that has helped me.

Nitric Oxide (read wikipedia's article on it for basic overview of it in the human body)

N.O. has some good purposes in the body, BUT too much is bad, and aggravates migraines, and I've proven it is related to my occipital headaches. For the past year, if I feel one of those back of neck headaches coming on, I take/drink one of the following, all of which lower the N.O. temporarily in the body; the headache disappears.

Strong green tea - and it can be the decaf version, it isn't the caffeine in it that helps
Strong methylators, but not methyl B12. An example is TMG (Trymethylglycine). Methyl B12 doesn't work for me for this, I don't know why.

If you are able to drink strong green tea, it may be worth trying next time. Try to buy the decaf type, as there is some speculation that caffeine opposes the effect on N.O. that you are trying to cause. However, I have used both caf and decaf green successfully for my own case.

 

[Misfit Toy]

@South -I can do that. I have decaf green tea. Thank you!

 

[Crux]

I used to get this type of migraine. Years ago, it was daily for 4 months. I would vomit daily.

There were other symptoms, but I thought all of it was from perimenopause.
Anyway, I started progesterone cream, OTC, but I was going through a lot of tubes quickly.
I tested low cortisol, ( was seeing a naturopath.)

The cortisol really helped for some years, but the migraines returned. Then I began high dose B12. It worked for some years, then the migraines came back. Then I learned that my folate was extremely elevated. That, in part was causing some of the inflammation.

Green tea is a folate antagonist. ( I've read that cortisol and progesterone may also do this... need to check.)

Now, I've realized that gut bacterial overgrowth can produce B vitamins. Too many can cause inflammation. The gut bugs also produce lactic acid. Too much can cause inflammation, and neurological damage.

I believe that SIBO may be the cause of so many of my symptoms. I'm treating it with : low dose antibiotics, a lower carbohydrate diet, and occasional herbals.

I still drink green tea daily.

 

[Misfit Toy]

The only time I get migraines is during menstrual cycle. That's it. I am going to try progesterone. And green tea. I had another migraine last night. Still have pd. insane heavy period.

 

[Crux]

I've read that vitamin K2 may help with heavy periods.

 

[Debbie23]

Surely that's what we are all here for, to support each other as best we can? I'm so sorry you are having such a horrid time of it, but please don't be put off seeking support.

I wish I could offer some advice that would help. I get hormonal migraines every month without fail and when I've over done things with my ME, especially cognitively, I get the most excruciating pain in the back of my skull. It's like someone has rammed their fist up the top of my spine into my skull and is squeezing. the only thing that has helped me is triptans, I'm on imigran now. They do have their own side effects but they do get rid of the pain in my head, I also find that if I take my beta blocker I get less migraines as well. I then take an anti emetic for nausea and vomiting, I get abdominal migraine as well, and that helps for that.

I don't know if any of that is an option for you but I do hope you can find some answers. Sorry if this isn't a great or helpful post, not very good myself at the minute! But I think all of us understand how you feel. Especially the frustrations of losing the basic, simple things in life most other people take for granted like just going shopping. I can't cope very well at all with supermarkets or shopping centres it's the lighting snd stimulus, it makes me really ill. Sometimes I'll go and think 'stuff it!' Just to feel like I'm doing something 'normal' just for once, despite knowing it will make me ill. That's what makes me mad about the idea that we are just phobic in some capacity about such environments, I actually love going to the supermarket! I love feeling that little bit of 'normality' and browsing the aisles etc. I'm not phobic I just can't cope with the environment very well that's all! But I think most of us have probably been there even if the details are slightly different. That's why I think places like this are important because as much as you feel it in the moment you aren't alone, people can and do understand Here. It's hard for people to understand when they are on the outside fringes looking in, we had family cut us off for two years, though that's since been reconciled but it didn't make it any less painful at the time or in hindsight; it's taken nearly fourteen years for my family to realise just how ill I am and have been and they are truly sorry now. But as hard as that was to bear what made it easier to come through it was support from people who did understand, even though I didn't know about PR until quite recently we knew of other support groups, so please keep posting because people do understand here and it will get you through. I know it probably doesn't mean much but I've been reading your threads and you have been in my thoughts, I hope so much that things improve for you soon.

 

[GracieJ]

If you are open to alternative medicine, there is a lot you can do yourself.

I often work on people with migraines with great success. I used to get cluster migraines for 3-4 months at a time. Massage therapy techniques ended that.

There are also several energy medicine techniques that work. I combine craniosacral therapy and acupressure. Hormonal migraines are a little tougher to work with, but still respond.

PM me if interested.

 

[Misfit Toy]

@GracieJ -the only thing that is holding me back from a massage is finances. They are $90 here and since I am not working and paying so much out due to my wrist surgery, it's making it hard.

I am going to the chiropractor today, which is not the same of course. When I was hit by a car back in 2005, craniosacral really helped.

I was going to a massage school for 2 years and that is cheap...for massage, but they are students and don't do craniosacral. They do general massage. Sometimes, most of the time it made my fibro much worse.

Craniosacral is great and Shiatsu has always been my favorite. But the massage school doesn't do that.

 

[GracieJ]

@Misfit Toy That is why I would be willing to explain some self-care techniques to you via PM.

 

[sarah darwins]

Hi Misfit Toy,

You may well have tried it and had no luck, but the only thing that works for me with persistent migraines (which appear to be wrapped up with hormonal stuff in my case) is almotriptan. So long as I take it early in the emergence of a migraine episode, it stops it completely. Generally leaves me feeling a little bit spaced out for a day or so, but I'll take that over the migraine every time.

For me, migraines often co-occur with the onset of PEM, and the almotriptan seems to help with that, too, for reasons I wouldn't even begin to try to guess at.

I'm afraid I've had no luck with any non-pharmaceutical approaches, but migraines and their treatment seem to be very individual.

Best wishes