Phoenix Rising tells QMUL: release the PACE trial data
Mark Berry, Acting CEO of Phoenix Rising, presents the Board of Directors’ open letter to Queen Mary University of London (QMUL) urging them to release the PACE trial data, and hopes that other non-UK organisations will join British charities in the same request...
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hiv like virus

Discussion in 'XMRV Testing, Treatment and Transmission' started by chris123, Jul 23, 2011.

  1. heapsreal

    heapsreal iherb 10% discount code OPA989,

    australia (brisbane)
    it will be interesting if co-infections will still need to be treated or if lower the xmrv viral load will be enough for the immune system to kick in and fight these co-infections.

  2. gregf

    gregf Senior Member

    Sydney Australia
    Hi Chris,

    XMRV is a retro virus like HIV and HTLV. But there is good news too.

    HIV destroys a persons immune system. That does not happen to us.
    With rest, we can improve. I am a considerably better then 5 years ago, almost pain free.

    If the XMRV test was easier to get in Aus, I am still not sure I would get it done yet. I have seen people who I am sure have ME, still test negative. I think the test is far from perfect and giving false negatives. Let them perfect it, then we can get it done.

    Because the medical world abandoned us, the ME patient community is well organized online. You can find lots of help online for managing symptoms and, as I said, it is possible to improve to where life is enjoyable. Good luck.
  3. liquid sky

    liquid sky Senior Member

    "Almost pain free?'' That is nothing short of a miracle with ME. Have any secrets you want to share? I am glad someone is able to enjoy relative comfort.

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