International ME/CFS and FM Awareness Day Is On May 12, 2018
Thomas Hennessy, Jr., selected May 12th to be our international awareness day back in 1992. He knew that May 12th had also been the birthday of Florence Nightingale. She was the English army nurse who helped to found the Red Cross as well as the first school of nursing in the world.
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history of inflammation

Discussion in 'General ME/CFS Discussion' started by 1gooddog, Feb 24, 2018.

  1. 1gooddog

    1gooddog Senior Member

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    Olympic Peninsula, WA
    I have had this disease for many years, suffered through closed minded physicians and too many "specialists" to count who all denied this disease existence.

    Shen living in Nebraska I did have an excellent, amazing, pcp. An old school family and general practice doc with an open mind. He knew I researched everything and he even came up with some ideas that didn't pan out. But he knew something was wrong and that it was progressing.

    One day after several miserable weeks and months of debilitation I visited my doc. I had full body episodes of just not feeling well in general. I don't know why I thought this but I felt I had a general inflammation. He listened and ordered blood drawn for a SED rate.. Within minutes my blood work agreed with what we both felt. I did have inflammation. He continued SED testing and it was always positive. However last year I requested my new Washington PCP perform one and it came back negative. That may have been during a period of some remission.

    I have always developed fever blisters after fevers. I know something has been going on when a painful blister pops up. When my most recent very severe crash came on, I developed a fever blister.

    Suffering with hot flashes in summer brings on a blister.

    In summation, considering my history - I believe, at least in my case, inflammation is heavily involved.

    Someday soon I would like to share my 70 yr old medical history with a researcher.
     
    ljimbo423 likes this.
  2. jesse's mom

    jesse's mom Senior Member

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    Alabama USA
    Last summer I felt like I had a cold for weeks. I had the first fever blister I have had in years. THEN in October I got the Flu type A that resulted in pneumonia and an 11 day stay inpatient in the hospital with a catheter in my arm for IV antibiotics and steroids. I haven't fully gotten back to my baseline yet.

    In photos the inflammation in my neck is super obvious. This started to get really bad with a fever and meningitis in the fall of 2011. I have been disabled ever since. (This was after a meningitis vaccine for college)

    I also had mono in the early 1980's... someday all this will come together and we will have some real help in getting well. Much like the HIV patients have gotten so much help.

    I hope you find a researcher.

    blessed be
     
    1gooddog and echobravo like this.
  3. 1gooddog

    1gooddog Senior Member

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    Olympic Peninsula, WA
     
  4. 1gooddog

    1gooddog Senior Member

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    Olympic Peninsula, WA
    Thank you for your info and support.

    I too have had common colds and flu, just not that often. Fevers and intense bouts of crying have brought on fever blisters.

    I guess what I was intending is that this inflammation I feel, like I have the flu, etc., that docs can't see, or even test for brings on the fever blisters, so I know there is inflammation present. This is most prominent at the onset of a severe crash. It leads me to believe researchers are on the right track with the inflammation research.

    In the early days of HIV, they did not know what they were dealing with. They were able to quickly determine it was a virus with lots of consequences, and how it was transmitted. I also believe they had a lot more pressure from influential people and even the government support, and finances to find answers.

    Do we have influential people on our side. Does our government have any awareness of this epidemic and it's effects? Have we made ourselves well known and heard? MS does have some influential support, and it did take many years to recognize and dx MS. Some treatments help, but there is no cure. If caught early it is better treated and managed, for some people. No cure or totally verifiable cause. Inflammation or viral suspected along with many other things. I know people who have died from it.

    I am re-entering this arena. So I am always asking questions as I don't seem to have enough time or energy.

    Praying for help for you and your recovery or management. Currently my life revolves around management of symptoms. I live in a controlled environment out of necessity. I am fortunate to not have to live in a city with all the noise and pollution.

    Have a Blessed Sunday and take care
     
  5. 1gooddog

    1gooddog Senior Member

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    Olympic Peninsula, WA
    PS - I do have to wonder about vaccines. Yes I believe in them, however some people do react. The term normal is mentioned everywhere, including vitamins and supplements. Years ago I began to question normal. My former PCP in NE agreed with me. When you have a condition or disease there is no normal. Isn't it the fringes on the edges that set the so called normal. The median?
     

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