Severe ME Day of Understanding and Remembrance: Aug. 8, 2017
Determined to paper the Internet with articles about ME, Jody Smith brings some additional focus to Severe Myalgic Encephalomyelitis Day of Understanding and Remembrance on Aug. 8, 2017 ...
Discuss the article on the Forums.

..his career was over after a devastating illness but Michael Crawford is poised to make..comeback

Discussion in 'General ME/CFS News' started by AndyPR, May 23, 2016.

  1. AndyPR

    AndyPR Senior Member

    http://www.dailymail.co.uk/home/eve...-make-stunning-West-End-comeback-aged-74.html

    http://www.dailymail.co.uk/home/eve...-make-stunning-West-End-comeback-aged-74.html

    It's a long-ish article, I've posted all the relevant, to us, bits that I saw.

    Don't know about anybody else but, with this limited information, this sounds to me more like a misdiagnosis than M.E., although if it isn't then we all know the cure now! ;)
     
    Mij, snowathlete, BurnA and 5 others like this.
  2. Hip

    Hip Senior Member

    Messages:
    9,336
    Likes:
    14,607
  3. Deepwater

    Deepwater Senior Member

    Messages:
    150
    Likes:
    783

    Agree about the misdiagnosis. I heard Michael Crawford talk about his ME on Radio once, and he blamed it on the fat suit he had to wear playing Fosco in The Woman in White. This is from the Wikipedia article on the musical, but it's the same story he told on radio: "At the end of 2004 Michael Crawford was taken ill, as a result of oversweating in the fat suit he wore to play the grossly obese character Count Fosco (originally reported as having the flu). Crawford explained: "For four months I had played the obese Count Fosco in a fat suit: a costume that had been my own clever idea. Unfortunately. Night after night on stage, the suit meant that I'd sweat profusely, to the point where I was losing all the essential minerals and nutrients from my body."
    So basically his illness was very serious but self-limiting once he got those deficiencies sorted out. Really the lifestyle change was incidental and he didn't have M.E. as such.

    Similar story, isn't it, with Martine McCutcheon and the Lightning Process? Now she seems to realise it was the change in hormone balance due to pregnancy that improved her condition (which I can well believe as I was free of my post glandular fever ME for 5 years due to pregnancies and breast-feeding), and she accepts that she's not actually cured. But the media do love a good psych miracle for us.
     
    sarah darwins likes this.
  4. Hip

    Hip Senior Member

    Messages:
    9,336
    Likes:
    14,607
    Firstly, if profuse sweating could cause an ME/CFS-like condition, you find such an illness prevalent in tropical countries. Or in people who enjoy regular long saunas.

    Secondly, standard blood tests look at sodium, calcium and potassium levels, so if there were a deficiency, his doctors would have detected it.

    Thirdly, if it were a mineral deficiency, that would be rectified in week or months, not the 6 years it took Crawford to recover.


    Not arguing for or against the possibility that Michael Crawford had ME/CFS; but excess sweating is not going to explain his illness.
     
  5. Deepwater

    Deepwater Senior Member

    Messages:
    150
    Likes:
    783
    Yes, okay I took Michael Crawford's testimony at face value. But I do believe that in a suit like that under theatre lights there could be very profuse sweating, enough to cause dehydration and mineral deficiency. I see in this article he says this then triggered a virus, so that would have delayed recovery. Also you need to understand how difficult it can be in the UK to get tested for anything if you present with CFS-type symptoms because the guidelines insist on only minimal testing so as not to encourage the patient's illness beliefs. I'm sure I'd been seriously ill for about 13 years before I first got those tests.
    The parts of the article posted don't actually suggest that the illness went on for six years, only that it caused Crawford to retire from his hectic lifestyle and disappear off to the wilds of New Zealand, and that it was 6 years before he was persuaded to return to the theatre.
    During his NZ period he took up sailing and grew his own food. If that was continuing ME then it's light years from the ME I have, or have had even during periods of partial remission.
     
  6. Hip

    Hip Senior Member

    Messages:
    9,336
    Likes:
    14,607
    I do appreciate that (as I am in the UK myself). The NHS seem to want to save money at every turn with this disease: minimal testing, and then once you are diagnosed, no treatments offered apart from the highly dubious GET/CBT.


    Again, that does not really follow. Crawford is just wildly speculating. Sweating does not trigger viruses. You catch a virus, and that is that.
     
  7. Deepwater

    Deepwater Senior Member

    Messages:
    150
    Likes:
    783
    Only it isn't. Whether you get ill or shrug the virus off depends on how well your immune system is functioning. All sorts of physical stressors will affect immune function, and if Crawford says the chronic dehydration and nutrient deficiency he was suffering did so I see no reason to disbelieve him. We are not talking here about normal sweating.
     
  8. Hip

    Hip Senior Member

    Messages:
    9,336
    Likes:
    14,607
    There is evidence to indicate that may be the case: the corticosteroid evidence uncovered by Dr Chia. It does perhaps make some intuitive sense that your immune function at the time you catch an ME/CFS-associated virus may have a bearing on whether you develop ME/CFS from the virus or not; however, I would not elevate this to a fact; at this stage it is just a possibility.



    How would Michael Crawford know that dehydration through sweating led to him developing immune deficiency? Did he have his immune function tested at the time he was sweating?

    I guess it is not infeasible that profuse sweating might have led to some sodium deficiency, since I believe sodium is the main electrolyte depleted through profuse sweating. And I found this animal study that noted antibody responses were reduced under low sodium conditions.

    However, it is still a pretty speculative idea to say that: profuse sweating + viral infection = ME/CFS.
     
    Last edited: May 24, 2016
  9. Little Bluestem

    Little Bluestem All Good Things Must Come to an End

    Messages:
    4,665
    Likes:
    5,478
    A virus, with or without sweating, can equal ME/CFS.

    It says that he lived as a recluse for a while, but gradually emerged. That sounds a lot like pacing to me. I think it is possible that he had ME/CFS.

    Even doing all of the wrong things, I almost recovered from my ME/CFS (or maybe it was just post viral syndrome at that time). I have often thought that if I had known what to do and could have afforded to do it, I might well have recovered.

    We need more early diagnosis with correct treatment to know what that looks like.
     
    sarah darwins likes this.

See more popular forum discussions.

Share This Page