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Hilary Johnson tells it like it is

Discussion in 'General ME/CFS News' started by LaurelW, Feb 22, 2011.

  1. LaurelW

    LaurelW Senior Member

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  2. justinreilly

    justinreilly Senior Member

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    This excerpt about McCleary saying to the govt that she's "resisting" pressure from patients to recommend banning blood donation from pwME made me absolutely sick! Really, she's at war with us, just like CDC:

    http://oslersweb.com/blog.htm?post=774136

     
  3. 5150

    5150 Senior Member

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    ---------------------------------------------------------------------------------
    Thanks for the heads up re Rubber Meets Road , Feb '11 , now being available.

    If patients know people who are yet unaware of our situation, Hillary's blog is an excellent fast-read introduction.

    Every time I read the chronicles, there is a stunned feeling of science fiction about it. The latest entry continues that feeling at its' worst.

    the story line is almost unbelievable, if I didn't already know it is true.
     
  4. Michael Dessin

    Michael Dessin Senior Member

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    yes so true!!
     
  5. cigana

    cigana Senior Member

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    That's made me really angry. We have to get rid of McCleary and find out who the anonymous donors are as a matter of urgency.
     
  6. muffin

    muffin Senior Member

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    I have to admit that I was so very caught off guard when CAA put in Vernon from the CDC. NOT a fan of Vernon and that selection was a big mistake by the CAA.

    NOT taking shots at the CAA, but it really is time to do a reorganization and a return to the original goals and missions as set forth by Founder Iverson.
     
  7. Enid

    Enid Senior Member

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    Hillary Johnson is coming to us (UK) in May Invest in ME London Conference - very much looking forward.
     
  8. heapsreal

    heapsreal iherb 10% discount code OPA989,

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    What about if they dont ban cfs blood donations , that we organise a big group of cfs patients and where a shirt that says i possibly have a retrovirus causing cfs/me (have to be a big shirt i suppose but get the idea) and we all go and donate blood and let the tv stations know about it, now that would stir everything up, wouldnt it!!!
    Hopefully a few psychobabblers need a blood transfusion and then we can tell them that they should be right if the keep exercising, lol.

    Now would that get attention or what!!!

    cheers!!!
     
  9. taniaaust1

    taniaaust1

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    CDC and Wessely would like that.. as without them doing anything, it would make us all look like nuts and like we have psych issues.
     
  10. *GG*

    *GG* Senior Member

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    I thought ME/CFS blood donations was banned in most major countries now?

    GG

    PS I like the idea of the T-shirts.
     
  11. Desdinova

    Desdinova Senior Member

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    I've been squarely on the fence regarding Kim McCleary. But now I'm really beginning to lean a little. The question bodes whether it's only her or the whole CAA. And what can one do except not support the CAA financially? Have a (petition) vote of No-Confidence is the only one left (that I can think of) and it's a drastic one at that.
     
  12. Doogle

    Doogle Senior Member

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    Desdinova,

    You can record your vote:

    Here How do you feel about The CAA?

    And/or here Petition to disassociate from CFIDS Association of America as our advocacy representative
     

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