Johnskip
Senior Member
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I think it would be helpful to get unbound excess iron out of the body??
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Oh you think you can give somebody ME by giving blood I disagreee, and I think it can actually help us by giving bloodYou're probably just kidding, but please don't take the chance of giving blood if you have ME.
There is now very good research indicating that there is something in our blood serum. We don't yet know what it is, but if you want to "give" blood, might be better to have it discarded than risking passing something on. In some places ME/CFS patients are not allowed to give blood.Oh you think you can give somebody ME by giving blood I disagreee
Oh you think you can give somebody ME by giving blood I disagreee, and I think it can actually help us by giving blood
There is now very good research indicating that there is something in our blood serum. We don't yet know what it is, but if you want to "give" blood, might be better to have it discarded than risking passing something on. In some places ME/CFS patients are not allowed to give blood.
Yes thankyou that's what I want to doYou can give a therapeutic 'donation'. This means they take your blood then throw it away.
It's an established way of reducing iron overload.
I have relatives (in law) who have to do this. I think they just needed a letter or somthing from the doctor to set this up.
I think this is how we get more energy reduce the excess unbound iron and up your ceruloplasmI think it would be helpful to get unbound excess iron out of the body??
stored iron is measured by ferritin you do not want stored ironOnly abut 10 % elevated ferritin is due to iron overload.
Ferritin is an acute phase protein so is elevated in inflammatory states, during infection, metabolic syndrome, liver disease and a number of other conditions.
The single most sensitive indicator of iron overload is transferrin saturation. >45% is strongly suggestive of iron overload, >55% is unequivocal iron overload.
Oh you think you can give somebody ME by giving blood I disagreee,
Though to be fair, although people may develop ME/CFS after receiving a blood transfusion, presumably by catching an ME/CFS-associated virus from the blood, that virus may not have come from an ME/CFS patient giving blood, but is more likely to have come from a healthy member of the public donating blood (because ME/CFS-associated viruses are common in the general population).Expressing his concern that ME/CFS might be contagious, the patient asked the doctor about the possibility of infecting others through casual contact. "I don't think so," Dr. De Meirleir answered. "But blood products can transmit it; we are sure of that. We have a rather large number of CFS patients who became ill immediately after transfusion."
Source: Can Blood Transfusions Cause ME/CFS
Ditto. I have super high ferritin, but I am borderline low iron ... a point lower it would be considered a problem.I would really recommend listening to what alicec said above. A few of us just talked about high ferritin and low iron in this thread: http://forums.phoenixrising.me/inde...ow-iron-and-ferritin.50758/page-2#post-838661
With something like CFS it wouldn't be surprising for someone to have high Ferritin with low iron levels. In my case I have had high ferritin for years and my iron is always either low or at the lower end of the scale.
Blood can be removed by a doctor, and is done routinely in hemochromatosis patients.Oh you think you can give somebody ME by giving blood I disagreee, and I think it can actually help us by giving blood
really why?I was reading about blood donation the other day, apparently if people with M. E donate it will make us more ill. For this reason we are not allowed to donate
I don't believe that for one secondI don't know why, it just said donating blood would cause us to feel more ill than we already do.