Discussion in 'General ME/CFS Discussion' started by Johnskip, Apr 19, 2017.
I think it would be helpful to get unbound excess iron out of the body??
Only abut 10 % elevated ferritin is due to iron overload.
Ferritin is an acute phase protein so is elevated in inflammatory states, during infection, metabolic syndrome, liver disease and a number of other conditions.
The single most sensitive indicator of iron overload is transferrin saturation. >45% is strongly suggestive of iron overload, >55% is unequivocal iron overload.
You're probably just kidding, but please don't take the chance of giving blood if you have ME.
Oh you think you can give somebody ME by giving blood I disagreee, and I think it can actually help us by giving blood
There is now very good research indicating that there is something in our blood serum. We don't yet know what it is, but if you want to "give" blood, might be better to have it discarded than risking passing something on. In some places ME/CFS patients are not allowed to give blood.
I would really recommend listening to what alicec said above. A few of us just talked about high ferritin and low iron in this thread: http://forums.phoenixrising.me/inde...ow-iron-and-ferritin.50758/page-2#post-838661
With something like CFS it wouldn't be surprising for someone to have high Ferritin with low iron levels. In my case I have had high ferritin for years and my iron is always either low or at the lower end of the scale.
Just as an example, Canada does not allow blood donations for CFS.
You can give a therapeutic 'donation'. This means they take your blood then throw it away.
It's an established way of reducing iron overload.
I have relatives (in law) who have to do this. I think they just needed a letter or somthing from the doctor to set this up.
Yes thankyou that's what I want to do
I think this is how we get more energy reduce the excess unbound iron and up your ceruloplasm
stored iron is measured by ferritin you do not want stored iron
Though to be fair, although people may develop ME/CFS after receiving a blood transfusion, presumably by catching an ME/CFS-associated virus from the blood, that virus may not have come from an ME/CFS patient giving blood, but is more likely to have come from a healthy member of the public donating blood (because ME/CFS-associated viruses are common in the general population).
In the UK, in any case, all blood and tissue donations from ME/CFS patients are banned.
Ditto. I have super high ferritin, but I am borderline low iron ... a point lower it would be considered a problem.
Blood can be removed by a doctor, and is done routinely in hemochromatosis patients.
And I agree that donating blood for use in transfusions would be extremely irresponsible while the cause of ME is unknown.
I was reading about blood donation the other day, apparently if people with M. E donate it will make us more ill. For this reason we are not allowed to donate
why would it be bad for us to give blood???? I understand risk of other people absolutely but for us?
I don't know why, it just said donating blood would cause us to feel more ill than we already do.
I don't believe that for one second
I suspect that brain iron deposition may be involved with neurodegenerative disorders. That would include ME.
The studies, though are mostly with MS, Parkinson's, Alzheimer's, etc. patients.
Phlebotomy doesn't work very well with removing brain iron. Chelation is looking better. Still, it needs more research.
You can also try a Google Site Search
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