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hhv 6 - Take my poll please!!!

Treating HHV 6: Does the literature recommend...

  • Taking Valtrex

    Votes: 0 0.0%
  • Taking Transfer factor

    Votes: 0 0.0%
  • Another approach: please post below

    Votes: 0 0.0%

  • Total voters
    6
Messages
45
what does the medical literature say about treating titers for hhv 6 that is is 1:1280

Please take the this poll thanks!
 
Last edited:

vamah

Senior Member
Messages
593
Location
Washington , DC area
I've never seen where anything but valcyte was effective with hhv6. As long as you get regular blood tests it should be safe. My titer was the same as yours and I have been on vacyte for a year. Titer now down to 1:320 but kind of stuck there.
 

SOC

Senior Member
Messages
7,849
Valtrex won't do much for HHV6. IMO, it's a waste of time and money for an active HHV6 infection. It might help keep HHV6 suppressed once it's no longer active.

You could try directing your doctor to the Treatments section at the HHV6 Foundation website.
However, no compound has yet been approved exclusively for the treatment of HHV-6. Thus, clinicians most often utilize the anti-cytomegalovirus (CMV) agents ganciclovir (Cytovene® IV), cidofovir (Vistide® IV), and foscarnet (Foscavir® IV) for the clinical treatment of HHV-6 (Table below). CMV (HHV-5) is a beta-herpesvirus that is closely related to both HHV-6A and HHV-6B.

Note that Valtrex is nowhere on the list for treatments for HHV6.

Your doc, like many others, may be afraid of Valcyte because of it's potential toxicity. Careful monitoring can help you avoid neutropenia and liver damage, but your doc needs to know what s/he is doing. Maybe finding a doc who understands the med would be your best solution.
 
Messages
45
SOC you're right on point with your advice. In addition to Valcyte is there any non perscription remedy for HHV6 you recommended?
 

SOC

Senior Member
Messages
7,849
SOC you're right on point with your advice. In addition to Valcyte is there any non perscription remedy for HHV6 you recommended?
Daughter and I have had some luck with a transfer factor product from ProHealth. I would take Valcyte rather than transfer factor any time, but when my HHV6 titres are climbing and I can't get Valcyte (like now, when Express Scripts is causing delays and other problems), I will use the transfer factor on the "better than nothing" theory. The product is pricey and I'm pissed off at ProHealth at the moment, so I suggest this with reservations.

If you have NK cell dysfunction, it might help to take OTC supplements like AHCC or inosine.

HHV6 is a nasty critter. If you can't get your current doc to treat it with appropriate meds, I'd vote for finding a doctor who will. You do NOT want to let it spread further.
 

SOC

Senior Member
Messages
7,849
My titers are 1:1380 is that enough to say its active?
Depends on who you talk to. Ignorant doctors will say any high IgM is just a sign of a past infection. Doctors knowledgeable about immune dysfunction in ME/CFS would probably say a titre that high along with appropriate symptoms is suggestive of an active infection and would treat. There's no established absolute number to say whether the infection is active or inactive.