Invest in ME Conference 12: First Class in Every Way
OverTheHills wraps up our series of articles on this year's 12th Invest in ME International Conference (IIMEC12) in London with some reflections on her experience as a patient attending the conference for the first time.
Discuss the article on the Forums.

Hepatitis B/other vaccines! Are they ok to have for PWME?

Discussion in 'General ME/CFS Discussion' started by Ellie_Finesse, Jan 23, 2016.

  1. Ellie_Finesse

    Ellie_Finesse Senior Member

    Messages:
    182
    Likes:
    537
    UK
    After seeing @charles shepherd thread, I was wondering what the thoughts were of everyone here regarding the thread title? Maybe they have some experiences that they wouldn't mind sharing!

    Just a quick background as to why I have given this thought!

    Within my job their is a risk of getting Hep B because of the children we work with. The school pay for all those it concerns to have the vaccine, which is opptional. I was due to have this last March but because I was off sick due to this illness I wasnt there to have it when the nurse came to the school.

    My boss asked me to check to see if I can have it because they are worried that it will make me sicker. Of course when I asked they said it will be fine. After searching online, I decided not to have it as I didn't think it was worth the risk. Also there is the question about flu vaccine, I have had it in the past but it made me ill, so I decline now when asked.

    Feel free to discuss amongst yourselves, I just thought it might be an interesting topic to discuss in length. It doesnt have to just be about the Hep B Vaccine but any.
     
    Clerner likes this.
  2. Tammy

    Tammy Senior Member

    Messages:
    1,070
    Likes:
    1,401
    New Mexico
    Personally.................I wouldn't touch any of the vaccine's.
     
    Wayne, Countrygirl and Ellie_Finesse like this.
  3. daisybell

    daisybell Senior Member

    Messages:
    1,601
    Likes:
    7,362
    New Zealand
    I made a decision not to have the flu vaccine after I got sick. I would only have a vaccine now if it was absolutely essential as I would worry lots that it might make me worse....
    Wasn't there a paper that came out of Australia which recommended not having vaccinations if possible?
     
    Ellie_Finesse likes this.
  4. Kati

    Kati Patient in training

    Messages:
    5,464
    Likes:
    19,585
    Actually it's the opposite, Dr Marshall-Gradisnik published on immunological effect of flu vaccine on patients with ME and it was in support of receiving the vaccine.

    Personally, I prefer to not get a flu shot. They are not being extremely effective anyways (covering different strains than the flu trends) and since my immune system is definitely in a state of high alert anyways (haven't had a cold in over 7 years). I live by myself (no contact with children) so I am low risk for flu (well as low as can be). I am overdue for my tetanus shot and keeping this in mind should I have small injuries which put me at risk to contract tetanus.

    As for Hepatitis B, @Ellie_Finesse casual contact with children will not put you at risk of contracting Hep B. Hep B is contracted through blood or sexual contact, often from birth transmission, or using dirty needles, or blood transfusions before they screened the blood which was a long while ago. Unless you are a RN, it might not be absolutely necessary.
     
    Last edited: Jan 23, 2016
  5. Ellie_Finesse

    Ellie_Finesse Senior Member

    Messages:
    182
    Likes:
    537
    UK
    The school I work at is a mainstream school with specialist unit attached. I work with children from mild to severe SEN. We have a mixture of SEN children at our school. You are right when you say usually working with children wouldn't require having Hep B. But the children I work with are high dependent children, medically.
    • PMLD (profound multiple learning difficulties) most children that are PMLD can't do anything for themselves. They are still in nappies and can't walk or talk.
    • High medical needs like Haemophilia, trachia, tube fed, severe epilepsy.
    Thats why we are offered Hep B, we are trained to deal with all their medical needs. At the moment I am in main stream working with a child that has Autism. We get moved around a lot and that will change at some point.
     
  6. Kati

    Kati Patient in training

    Messages:
    5,464
    Likes:
    19,585
    i am not sure what SEN means.

    But unless you will give injections to their children, or they will bite you, the risk of contracting hep B remains low.
    In the end, the choice to get vaccinated remains yours. There is a risk either way.
     
    L'engle likes this.
  7. HowToEscape?

    HowToEscape? Senior Member

    Messages:
    468
    Likes:
    614
    Check with your doc, provided they have at least 100 or so patients with ME/CFS. Since there's no large scale research regarding our condition (can't be, as there's not even a universally agreed definition much less a firm Dx), docs have to work with observation. You may also have just flip a coin.

    An example, N=1 so it is hardly definitive: My doc recommended against the flu vax for me, based on his observations of other patients. I used my personal experience with colds and flu (different bugs, but the same immune system) and have requested the vax, doc said OK. I now insist on getting it every year regardless of how strong or weak the match is. I did that because even a whiff of a cold or flu knocks me out, although I went several years without getting one. I decided that a predictable and probably mild reaction bested an unpredictable, weeks long crash.

    Result: In the seasons I've taken the flu vax since getting ME/CF, I've never had a significant flu or even cold, despite living in a major city which is quite filthy and has many people who disdain personal hygene. It has worked for me, YMMV.
     
    Ellie_Finesse likes this.
  8. Ellie_Finesse

    Ellie_Finesse Senior Member

    Messages:
    182
    Likes:
    537
    UK
    SEN = Special Educational Needs

    I forgot to metion that we also have children with severe behavioural and unfortunately some of our children bite. They offer and pay for Hep B vaccinations because there is a risk we can contract it. Sorry should of made that clear when explaining.

    I have had it before when I first started working with the children but it didnt take. Because I have been so poorly Lately I decided not to have it again.

    I just wondered what others experiences were with vaccinations, which is why I put thread up. Maybe I didnt make that clear enough in original post sorry! :)
     
  9. Tammy

    Tammy Senior Member

    Messages:
    1,070
    Likes:
    1,401
    New Mexico
    What do you mean it didn't take? How would you know?
     
  10. Ellie_Finesse

    Ellie_Finesse Senior Member

    Messages:
    182
    Likes:
    537
    UK
    When work hired a nurse to come in and have the next wave of vaccines done those that had already had it were asked to have a blood test to see if they were immune. Mine showed up that I wasn't. So I was put forward to have it done again.
     

See more popular forum discussions.

Share This Page