Phoenix Rising tells QMUL: release the PACE trial data
Mark Berry, Acting CEO of Phoenix Rising, presents the Board of Directors’ open letter to Queen Mary University of London (QMUL) urging them to release the PACE trial data, and hopes that other non-UK organisations will join British charities in the same request...
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Helping people understand Invisible Disabilities

Discussion in 'Lifestyle Management' started by Orla, Mar 5, 2010.

  1. Orla

    Orla Senior Member

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    Ireland
    Invisible Disabilities: Helping people understand

    There is a website called The Invisible Disabilities Advocate

    http://www.invisibledisabilities.org/index.html

    They have some potentially useful resources for helping to explain invisible disabilities to others

    http://www.invisibledisabilities.org/pubs.htm

    Their booklet, But you Look Good!, I think is very good.

    http://www.invisibledisabilities.org/booklet.htm

    The booklet contains do's and don't tips for the healthy reader.

    I thought that the booklet could also be useful for the sick person to read themselves. I think it shows good insight into why healthy people sometimes make comments which are annoying to us (e.g."but you don't look sick","I get tired too"). It might be a little less irritating to hear certain comments once one has a better understanding of why the person is saying such things. The main idea of the booklet is to give insight to the healthy person, but I think it could help sick people gain insight also.

    Orla
     
  2. flybro

    flybro Senior Member

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    pluto
    Thanks Orla

    I'm bumping this to give more peole the opprtunity to see it.

    Some good reseources here.
     

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