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Help with Lyme and Co-infections, Viral testing

Discussion in 'Lyme Disease and Co-Infections' started by ChrisD, Mar 26, 2018.

  1. ChrisD

    ChrisD Senior Member

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    East Sussex
    I have been in communication with Armin Labs in Germany about comprehensive testing, and based on my symptoms they have selected a number of tests that could come to over £1000.

    I have already had an ELISA on the NHS in the UK but I am wondering which of the following tests would be available on the NHS if the doctor is pushed for them (Mainly thinking the viral testing):

    TIER 1:

    Borrelia burgdorferi: Borrelia EliSpot + CD3/CD57+ Cells + Borrelia
    IgG /IgM SeraSpot®

    Chlamydia pneumoniae - 6 symptoms: Chl. pneumoniae EliSpot + Chl.
    pneumoniae IgG /IgA antibodies
    Coxsackie-Virus - 6 symptoms: Coxsackie IgG /IgA antibodies

    Mycoplasma - 4 symptoms: Mycoplasma Elispot (NEW) + Mycoplasma
    pneumoniae IgG /IgA antibodies
    EBV - 4 symptoms: EBV Elispot + EBV IgG /IgM /EBNA /Early
    /Avidity antibodies
    CMV - 4 symptoms: CMV EliSpot + CMV IgG /IgM antibodies
    HSV - 4 symptoms: HSV 1/2 EliSpot + HSV 1/2 IgG /IgA /IgM
    antibodies
    Chlamydia trachomatis - 4 symptoms: Chl. trachomatis EliSpot + Chl.
    trachomatis IgG /IgA antibodies

    TIER 2:

    Bartonella - 2 symptoms: Bartonella Elispot (NEW) + Bartonella
    IgG antibodies + Bartonella IgM antibodies
    (testing for Bartonella based on self-observed symptoms that give a good indication of this including stretch mark rash two years ago)

    Also if anyone could shed some light on which of those are ''worth'' testing for, in terms of what can actually be treated or what usually shows a positive in ME/CFS/Lyme, that would be super helpful. Obviously if I can get some of those tested on the NHS then it reduces my bill.

    I'm a tiny bit sceptical of the health questionnaire that selects the likelihood of each infection as it was not very extensive and didn't cover all my symptoms at all.

    At this point in time my health issues consist mainly of ME with balance and coordination and some connective tissue issues, but from onset infection I experienced a wide range of symptoms such as Costochondritis, plantar fascilitis, reactive arthritis, Fibromyalgia, ataxia and so on (all connected with Lyme).

    Any help would be much appreciated :)
     
    Sancar likes this.
  2. Learner1

    Learner1 Forum Support Assistant

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    Pacific Northwest
    There are PCRs for both of these that might help with a diagnosis.

    EBV can be tricky to find, so you also want the VCA IGM and IGG. you could be negative for any of those tests but the positives that you get will help you figure out if you have it or not.

    You might also choose to have hhv-6 and hhv-7 tested for.
     
  3. duncan

    duncan Senior Member

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    If it were me, I'd want an IgG Western Blot (Lyme, sensu lato) just to see which bands, if any, lit up. I do not know how cost would factor into it. Access may also be an issue.
     
    Sancar and ChrisD like this.

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