1. Patients launch a $1.27 million crowdfunding campaign for ME/CFS gut microbiome study.
    Check out the website, Facebook and Twitter. Join in donate and spread the word!
ME/CFS and the Magic of the Canine Factor
There's been plenty of research indicating that having pets is good for your health. I never really noticed any particular benefits to having cats, though that may have had more to do with my cats. They've been fairly indifferent to my presence and we've shared a live-and-let-live...
Discuss the article on the Forums.

Help us think up a name for the Lipkin Microbiome Study campaign

Discussion in 'Fundraising' started by Sasha, Feb 15, 2014.

  1. Sasha

    Sasha Fine, thank you

    Messages:
    7,463
    Likes:
    5,358
    UK
    We need your help! We're trying to think up a name for our crowdfunding campaign and we need it fast, so we can get on with the website and other materials.

    We've had lots of suggestions but we don't seem to have one that entirely hits the spot just yet (my own suggestions included o_O).

    We want to avoid funny/silly/rude names (though we see the attraction!) - our serious disease is already trivialised and we want to avoid jokeyness in the campaign name.

    Good qualities would be: inclusive, inspiring, intriguing... you get the picture.

    The name could be literal ('Lipkin ME Microbe Study') or metaphorical (like Jen Brea's 'Canary in a Coalmine' or Ryan Prior's 'Blue Ribbon' is). Or it could relate to the crowdfunding aspect (like Maria Gjerpe's 'ME and You' did). But it does need to have some relevance.

    It should be short - no more than four or five words at the most.

    The study involves 200 patients and 200 healthy controls and looking at the ecosystem - the 'microbiome' - of gut bacteria, fungi and viruses to see if any are associated with having ME.

    You can read about the study here for inspiration. Maybe some words of Dr Lipkin will spark you off - he has said in interview that he thinks the gut is 'key' to ME, 'where the action is'. Here's another interview by Cort, with Dr Lipkin talking about the microbiome study near the end.

    I've listed all the names anyone has come up with so far (excluding the humorous ones, sorry!) in the next post to help give you an idea but you might first want to try to come up with some independently.

    Thanks to those of you who've already tried - please keep trying and everyone else, please join in! :)
    Simon likes this.
  2. Sasha

    Sasha Fine, thank you

    Messages:
    7,463
    Likes:
    5,358
    UK
    Here's what we've go so far:

    Million4ME
    FundME
    Hunting for a Cure
    Lipkin's $1 million dollar appeal
    The $1 million microbiome project
    Million4MEBug
    MicrobioME NOW
    Million Dollar Bug Hunt
    Million Dollar Virus Hunt
    Million Dollar Cure
    The Lipkin Million Dollar Bug Hunt
    Lipkin ME Gut Pathogen Study
    Million Dollar Pathogen Hunt
    Million Dollar Pathogen Study
    ME and Lipkin
    ME and Columbia
    Microbiome mapping
    The Million Dollar Project
    Million4You
    Ian's Hope
    A bridge to health
    Million Dollar Medical Frontier Project
    ME Medical Frontier Project
    Million for ME
    Fund ME
    Lipkin's ME million
    million4ME
    Hunting for a Cure
    The Million Dollar Trigger Appeal
  3. Sasha

    Sasha Fine, thank you

    Messages:
    7,463
    Likes:
    5,358
    UK
    The Cutting Edge?

    I'm thinking, both because the science in the study is cutting-edge and because ME itself is at the cutting edge of science - if it wasn't, our problem would have been solved by now. I like the idea of presenting our disease as a cutting-edge challenge to be solved, not something to be dismissed with an idiot's 'we haven't found a cause yet so it must be psychological' silliness.
  4. Legendrew

    Legendrew Content team

    Messages:
    513
    Likes:
    631
    UK
    I think the cutting edge doesn't get to the point of what the disease or research is about. I like

    Lipkin's $1 million dollar appeal
    The $1 million microbiome project

    They tell us how much the project needs, who is doing it and what the research centres around, lots of 'M's going on there too so a chance for some alliteration which also helps with these snappy names.
    Ruthie24 and Sasha like this.
  5. OverTheHills

    OverTheHills

    Messages:
    271
    Likes:
    167
    New Zealand
    Unlock ME? 'cos me and you and all the other PWME we're all kept in cages by the disease. Plus scientifically unlock the mystery. Doesn't have anything to do with guts or bugs.

    Perhaps that has been used already, my memory is ...... fubar (as alex says ).

    OTH
    .
    Ruthie24 and Sasha like this.
  6. geraldt52

    geraldt52

    Messages:
    43
    Likes:
    162
    how about: HelpME or: Why Not ME?
    Last edited: Feb 15, 2014
    Simon, Ruthie24 and Sasha like this.
  7. Esther12

    Esther12 Senior Member

    Messages:
    5,107
    Likes:
    4,908
    Honestly, I like 'Lipkin ME Microbe Study', and think that some of the more marketing style names could just be a needless distraction,

    Thanks to all those working on this.
    Izola, Simon, SOC and 4 others like this.
  8. Sasha

    Sasha Fine, thank you

    Messages:
    7,463
    Likes:
    5,358
    UK
    Join ME?

    Together With ME?

    Stand with ME?

    erm... :bang-head:
    Ruthie24 likes this.
  9. Sasha

    Sasha Fine, thank you

    Messages:
    7,463
    Likes:
    5,358
    UK
    Unless we get a good one!

    It's certainly an option and it has the merit of being clear but I thought 'ME and You' was a better name for that campaign than 'Haukeland Rituximab Appeal' would have been or something similarly literal. I'm on the fence, though. I haven't seen a real 'aha!' one yet (though it's not just up to me!).

    Let's keep 'em coming...
    Simon and vli like this.
  10. maryb

    maryb iherb code TAK122

    Messages:
    2,712
    Likes:
    1,696
    UK
    I like 'Lipkin ME Microbe Study' too.
    says it all - short and to the point
    Simon and Sasha like this.
  11. Sasha

    Sasha Fine, thank you

    Messages:
    7,463
    Likes:
    5,358
    UK
    The Microbiome and ME
    A Hundred Trillion and ME (we have approx. 100 trillion microbes in our guts)
    ME: The New Frontier
    A Million Patients Waiting (there are approx. 1 million ME patients in the US, where this study is based)
    A Million and ME ($1 million, and a million US patients) - quite like that one...

    I don't have a future career in advertising, that's for sure...

    :bang-head::bang-head::bang-head::bang-head::bang-head:
    Simon, Ruthie24 and maryb like this.
  12. Firestormm

    Firestormm Senior Member

    Messages:
    5,817
    Likes:
    5,923
    Cornwall England
    It is hard. Do we adopt the e.g. Norwegian approach and 'ME and you' which was also for a specific study, but managed to engage with patients because - at least in part - it united them and made them feel a part.

    Or do we go for something that is, as has been said, more descriptive of the study itself and includes 'Lipkin'?

    If you had a campaign, like Maria's name, then you could always describe what it was all about on any site etc. as again Maria did. Hmm...

    Primary audience and donors are patients/families/friends for this campaign - at least in the main - so perhaps I was wrong initially when thinking also of a more descriptive and accurate title.

    I pictured a T-shirt or badge, with 'I am backing Lipkin' and a large 'Thumbs Up'.

    My only suggestion on the forum I think so far has been 'Me and my Microbiome' but I was singing in my head at the time, 'Me and my shaaadow' :)

    The title of the study is not exactly snappy is it? But it is a study that I think is easy to describe to anyone who asks. And we can certainly help make it easier.

    So, I am thinking now of something that will be more along the lines of the Norwegian effort, if anything: though I would have liked to include - ME, Lipkin, and Microbiome in the title... or even ME, Columbia, and Microbiome... Aw nuts.

    I think I need a lie-down! Haven't we got anyone with any advertising experience on here? :)
    Sasha likes this.
  13. OverTheHills

    OverTheHills

    Messages:
    271
    Likes:
    167
    New Zealand
    I like that last one too. A million and ME is eye-catching, relevant, short, tech-free. As you point out it is flexible too.... 'a million US citzens are disabled by ME but the government won't fund research' as well as 'a million$ to get a top scientist to do in-depth research'.
    I think having Lipkin in the title means something to us and other insiders but is unnecessary/superfluous for public awareness.
    OTH
    Ruthie24, maryb and Sasha like this.
  14. Sasha

    Sasha Fine, thank you

    Messages:
    7,463
    Likes:
    5,358
    UK
    I think both approaches are valid.

    It's worth bearing in mind that people are fairly unlikely to see the name without an accompanying explanation of it. When they come across the campaign, it's going to be via our website, an article, a blog, a leaflet, a letter to the press, a radio feature, etc. etc. - and they'll first hear about the microbiome study and then the name of the campaign will be mentioned, rather than the other way round.

    ME Million Campaign?
    Simon and Ruthie24 like this.
  15. maryb

    maryb iherb code TAK122

    Messages:
    2,712
    Likes:
    1,696
    UK
    But on the other hand if Lipkin finds something, everyone in the world will know his name!!
    If he's prepared to do it I would like to see his name on it.
    Izola and vli like this.
  16. Sasha

    Sasha Fine, thank you

    Messages:
    7,463
    Likes:
    5,358
    UK
    Thanks - it's also a bit of a play on 'a million and one', as in 'a million and one reasons', etc.

    I think you're right about having Lipkin in the name - he's always going to mentioned in the context of the campaign and I expect the campaign website will have him as a tag or something.
    Simon and Ruthie24 like this.
  17. Firestormm

    Firestormm Senior Member

    Messages:
    5,817
    Likes:
    5,923
    Cornwall England
    'A Million and ME' gets my vote too. I need to think how it might appear and what the connotations are - but it's late and I'll do that tomorrow if I can :)
    Ruthie24, ggingues and Sasha like this.
  18. Ruthie24

    Ruthie24 Senior Member

    Messages:
    147
    Likes:
    261
    New Mexico, USA
    I like "A Million and ME" too for the reasons stated above. Was trying to figure out if we could work Lipkin into that somehow but the beauty of that title is it's brevity and ....all the things stated above.;)

    I suppose we could do "Lipkin and ME" but I kind of like the "Million and ME" better.
    Sasha likes this.
  19. leela

    leela Slow But Hopeful

    Messages:
    2,368
    Likes:
    2,696
    Couchland, USA
    Imho, don't cap the dollar amount right there in the name. Also, I've never been big on playing with M.E. as a homonym for the personal pronoun.

    I'm with Esther on the "Lipkin M.E. Microbiome Study", even if that makes me a hopeless pragmatist...:nerd:
    Izola, beaker, Simon and 2 others like this.
  20. Sasha

    Sasha Fine, thank you

    Messages:
    7,463
    Likes:
    5,358
    UK

See more popular forum discussions.

Share This Page