1. Patients launch $1.27 million crowdfunding campaign for ME/CFS gut microbiome study.
    Check out the website, Facebook and Twitter. Join in donate and spread the word!
A Little Poisoning Along the Road to ME/CFS
Looking at my symptoms, many of which are far less these days and some are gone, it would be easy to figure that I'd just been dealing with some heavy-duty menopausal issues.
Discuss the article on the Forums.

Help! Symptoms are driving me crazy!

Discussion in 'General Symptoms' started by Ivana, Jun 2, 2012.

  1. alex3619

    alex3619 Senior Member

    Messages:
    7,689
    Likes:
    12,539
    Logan, Queensland, Australia
    I have only had a cytokine storm twice - once with a flu or something and once with food poisoning, never with meds. Eliminate each med one at a time for a day or two (or more if necessary) to see if that helps, but do ask your doc for advice first. Cutting off meds can be dangerous. Bye, Alex
     
  2. Crux

    Crux Senior Member

    Messages:
    583
    Likes:
    212
    USA
    Hi Ivana;
    It's only recently that I realized that it could be excess copper that's been causing so many problems. I also have a long history of migraines, vomiting,etc.

    For now, I'm even a bit afraid of chocolate.... 1 oz. or 28 grams, ( I'm from the US), contains 1/2 the RDA of copper. So I guess my strong negative reaction to it was because of that. ( One of my side-effects was flatulence that could even send dogs running away.)

    Maybe in the future I'll try it, but I'll have to be away from people, surely.

    But now that I'm taking zinc daily, I'm feeling so much better. I believe I've had zinc deficiency probably from birth. It helps balance copper when taken in good measure. Both zinc and copper are vital, but it's easier to have too much copper over zinc.

    I'm also eating foods with higher zinc; beef and lamb...this news coming from an ex-vegetarian. There's still so much left to learn.
     
  3. Ivana

    Ivana Senior Member

    Messages:
    112
    Likes:
    10
    hi crux.. Omg my copper levels are high, as revealed by my latest test results.. Ill try more zinc.. Thanks for that! Ps. Excuse the bad grammar, i'm using my phone as i'm too tired to use the comp
     
  4. taniaaust1

    taniaaust1

    Messages:
    8,247
    Likes:
    5,215
    Sth Australia
    See if you can find out your levels of the essential trace mineral molybdenum.... as molybdenum helps body with certain detox processes and if low.. high copper can result.

    (I use a supplement called molyzinc (molybdenum and zinc) due to low molybdenum and my hair tests also show very high copper. This supplement has been helpful for me.
     
  5. rlc

    rlc Senior Member

    Messages:
    822
    Likes:
    246
    Hi Ivana, what kind of test did you have that showed high copper was it a standard medical test like serum copper test etc???

    All the best
     
  6. Ivana

    Ivana Senior Member

    Messages:
    112
    Likes:
    10
    Tania- thank you for that, I'll have the test done.

    rlc- it was a blood test which KDM did, it's under the 'Toxicology' section so maybe that's the test which checks it? It was just from a standard blood test, no special serum test... I hope that helps!!
     
  7. Anne P

    Anne P

    Messages:
    54
    Likes:
    9
    Australia
     
  8. Anne P

    Anne P

    Messages:
    54
    Likes:
    9
    Australia
    Hi Ivana

    Glutamine and chocolate are both extremely high in a natural chemical called 'amines' and cause huge cytokine storms for me. Glutamine is incredibly toxic for me and many with ME/CFS. Chocolate takes a couple of days to have a bad effect but the migraines, depression pain nausea are so extreme that I have no desire for chocolate any more. Hope this helps.

    Anne
     
  9. hurtingallthetimet

    hurtingallthetimet Senior Member

    Messages:
    612
    Likes:
    115
    hello i dont know what cytokine is...but if your getting worse after taking something you should talk to doctor to change it...

    i am like alot very sensitive to alot of medications, alot of side effects etc...one was the worse cant remember what it was it was suppose to help with depression social anxietys but i ended up in er two days in a row...

    side effects can be terrible hope your doctor can help
     
  10. Ivana

    Ivana Senior Member

    Messages:
    112
    Likes:
    10
    Hi Anne,

    You mentioned glutamine is bad for u, did u mean glutamate by any chance? My cfs doc gave me glutamine l supplements as he says they're meant to be good for the digestive system and healing the gut.. a lot of literature backs this up but now i'm a bit unsure after you mentioned glutamine. Hmmm, I wonder why I was prescribed that.
     
    TCP36 likes this.
  11. Sushi

    Sushi Moderator and Senior Member Albuquerque

    Messages:
    7,270
    Likes:
    6,330
    Albuquerque
    Glutamine is often prescribed for leaking gut, but for some it seems to morph into glutamate.

    Sushi
     
    TCP36 likes this.
  12. Ivana

    Ivana Senior Member

    Messages:
    112
    Likes:
    10
    Hi Sushi

    I've got leaky gut so it was prescribed for me. How does it morph into glutamate?

    Ivana
     
  13. rlc

    rlc Senior Member

    Messages:
    822
    Likes:
    246
    Hi Ivana, the serum copper test is the standard test that they do for copper so it was probably that one. Don’t know what testing you have had done, but it is a test result that must be followed up on if it hasn’t been already, having high results on this test means you can have anyone of the illnesses listed here http://en.diagnosispro.com/differential_diagnosis-for/copper-serum-lab-increased/11099-154.html Some of them have symptoms very similar to ME and some are very rare and most doctor’s don’t know about them, like Wilson’s disease.

    The body controls levels of minerals very well, and generally stops absorbing them if too much is ingested in healthy people. So it is very unlikely that your high copper levels are from eating too much chocolate, the test implies that something else is going on. So it is important that the copper result gets followed up on and other possible causes are investigated. Hope you’re starting to feel a bit better with being of the meds.

    All the best
     
  14. Anne P

    Anne P

    Messages:
    54
    Likes:
    9
    Australia
     
  15. Anne P

    Anne P

    Messages:
    54
    Likes:
    9
    Australia
    Glutamine is probably fine for those who are not sensitive to amines. I took glutamine and it made me sick. The natural and added chemicals in food such amines, salycilates, bezoates etc: can make sensitive people intolerably ill. See www.fedup.com.au. Hope you find what is making you react Ivana
    .
     
    TCP36 likes this.
  16. TCP36

    TCP36 I'm not giving up, despite the setbacks and BS!

    Messages:
    67
    Likes:
    18
    UK
    I wish I'd read this a couple of weeks ago. I have recently modified my diet and started to take a protein shake full of amino acids mainly glutamine. I drank it for four days and my IBS started to flare. I felt unwell so stopped taking it. I am now suffering from severe nerve pain all over and my gut and back are very uncomfortable. I realise that this has been the cause and I wish I had never tried it.
     

See more popular forum discussions.

Share This Page