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Help: scary relapse this weekend, fainting, rectal bleeding, nausea...

Discussion in 'General ME/CFS Discussion' started by Antares in NYC, Sep 9, 2013.

  1. Crux

    Crux Senior Member

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    Hi Antares;

    This Drugs.com link lists rectal bleeding as a possible GI side effect of NAC.
    http://www.drugs.com/sfx/nac-side-effects.html

    I've had bleeding problems from B12 deficiency, but not rectal.
    I surely hope you find the cause, it is very frightening.
     
    taniaaust1 likes this.
  2. Sushi

    Sushi Moderator and Senior Member Albuquerque

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    Emergency Rooms are not allowed to turn away someone in need of treatment, but...even if you can't pay they will harass you indefinitely to try to get the money out of you. (Bill collectors at the door scenario).

    In fact, Emergency Rooms are the "go to" option for those will no insurance and no funds (and thus no doctor), but they don't make "I can't pay" a quick or pleasant experience and not paying will affect things like your credit rating.

    Hopefully the implementation of the new health care law will ease this situation.

    Ugh!

    Sushi
     
    Valentijn, Nielk, WillowJ and 2 others like this.
  3. peggy-sue

    peggy-sue

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    "Hopefully the implementation of the new health care law will ease this situation."

    I do hope so, for all of you over there! :hug:
     
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  4. Antares in NYC

    Antares in NYC Senior Member

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    Thanks, Crux. I think the NAC contributed more to the drop in blod pressure. The severe bleeding started on Wednesday night, a good two days prior to taking NAC. I'm sure it contributed to some of the bleeding, but that started earlier.

    This whole intestinal bleeding business has been going on almost as long as I've had CFS, but it used to be less common. Now it happens every few months. For the record, this increase of bleeding episodes started this January, alongside an increase in brain fog and cognitive issues (as if I didn't already have massive problems with that!)

    I'm also B12 deficient, together with a number of other vitamin and mineral issues.
     
  5. WillowJ

    WillowJ Senior Member

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    Large amounts of GI bleeding is indeed an ER issue, but if you don't have good coverage hopefully your GI doc can suggest a workaround (I had a specialist who did that for me after we figured out they didn't know what to do with me in ER for this one problem I was having).

    On my Medicare Advantage plan it costs $65 to go to ER.

    They should give you IV fluid to help you recover. (Besides doing testing to check to see how bad the bleeding is and what's causing it.)

    I hope you feel better and figure it out.
     
    rosie26 likes this.
  6. WillowJ

    WillowJ Senior Member

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    PS one can always search "low-cost doctor" plus their city name, to find free clinics and clinics with sliding fee scales based on income
     
    rosie26 likes this.
  7. roxie60

    roxie60 Senior Member

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    second attempt tp post :mad:. Now have new symp to add to the pile :mad::confused: , intestinal bleeding with stool, quite a bit, kinda scary. I have added Levothyroxine, Lityium Orotate and Adrenogen in the last month but the reasch so far I'm not seeing any strong indication of bleeding as a side affect. Anyone take these currently or in the past and had this problem?
     
  8. Hope123

    Hope123 Senior Member

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    Anyone with blood in their stool should report it to their doc. And if it's enough to cause you to faint or feel like you're going to faint, make your chest hurt, or have problems breathing.........you need to go to the Emergency Room rather than waiting on hold for your doc! I have seen people die, quickly in some cases, from either throwing up blood or from rectal bleeding. Don't attribute it to the CFS.....because it's not a part of any criteria for ME/CFS.

    Blood in the stool can be anything from benign hemorrhoids to fatal colon cancer. Also a bunch of other conditions. For the original poster, if your GI docs have not done it, there are tests where they inject special substances into the blood stream and can track from where in your gut you are bleeding from. How well the test performs though depends on your rate of bleeding.
    http://www.medscape.com/viewarticle/747036_8
     
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  9. Hutan

    Hutan Senior Member

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    @Antares in NYC
    Thanks for posting this. Did you ever get to the bottom of your rectal bleeding? (sorry for the inadvertent pun).

    The reason I ask is that two days ago, I felt very nauseous and went to the toilet. The toilet bowl filled with a lot of blood and there were clots on the toilet paper. There was a bit of blood later in the day but nothing since.

    This rectal bleeding wasn't caused by constipation and I have no history or indication of hemorrhoids. I had a colonoscopy about a year ago due to gut issues and all was clear. I have felt more tired than usual for the last two days and have high pressure in one ear and my head in general and a heaviness in my abdomen/kidneys. And a migraine today.

    I haven't got to my doctor yet, but will. But I was interested to see your experience had similarities to mine and so am curious about what you might have found out.

    I have been taking Florinef for a few weeks.
     
  10. perrier

    perrier Senior Member

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    Hi Antares,

    Kenny de meirleir told my daughter not to take NAC,because he said many of his patients didn't tolerate it.

    As for the bleeding: my adult daughter ( ill,with CFS for 13 years now) has had four major GI haemorrhages, in the last three years. These required transfusions because she lost so much blood, and the hemoglobin dropped. During the first haemorrhage the blood came out like from a garden hose. It was frightening. She was resuscitated because BP dropped, etc. many tests were done and nothing acute was found! One diverticulum, was localized.

    She has now relapsed from the last bleed and can't walk, and I need suggestions about that.

    But the colour of the blood is also important. If it's dark it's from higher up the tract. You say yours was bright red, so it's lower down the tract.

    Please go to emergency when the bleeding is constant,please. I know the hospitals aren't often what they should be in a civilized country,but you can ask for an RBC scan to locate the place. But this has to be done whilst bleeding. The fools in emergency didn't do this for my daughter, so now she carries a letter from a physician just in case.....

    Please update...
     
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  11. Antares in NYC

    Antares in NYC Senior Member

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    Hi Hutan,

    Well, several colonoscopies and endoscopies later we still don’t have a clear idea of what causes these strange bouts of profuse bleeding. The colonoscopies have at least discarded any scary problems. All of the tests, with the exception of finding a small polyp, came out fine. No major issues in upper or lower intestinal tracts.

    What my gastro doctors have determined is that the intestinal bleeding may be the result of some sort of autoimmune mechanism. By carefully observing an elimination diet, I noticed that those episodes of intestinal bleeding tended to be more common after consuming dairy products. By just eliminating dairy (cow’s milk and cheese) from my diet, I have been able to reduce the frequency of those episodes dramatically.

    Funny thing: two different studies show that I’m not lactose intolerant, so it’s not a reaction to that specific milk protein.

    One of my doctors said that given my condition (ME/CFS, Lyme) my immune system could be overreacting to something in dairy that reminds it of whatever pathogen I’ve been fighting for 16 years. That may be the case.

    I have noticed that, in addition to dairy, sometimes a very stressful situation also brings an episode of severe gastric bleeding.

    So in conclusion, not sure we have a full picture of what’s causing this problem, but it may be related to the immune dysfunction at the core of ME/CFS. Changing my diet has helped curb the number of occurrences considerably., but it still happens every few months. Hope it helps.
     
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  12. perrier

    perrier Senior Member

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    Hi folks,
    This discussion is very important because Gi bleeding is not associated with CFS. And yet, here we have people who do experience this nightmare. And if I'm guessing correctly, these people did not bleed prior to getting sick. What you highlight, Antares, is very interesting: could the immune system be the partial reason. I don't know. My daughter doesn't take any diary, and she bled too many times and too dangerously.
     
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  13. digital dog

    digital dog

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    I used to bleed all the time. I was young and ignored it. Mine was from too many antibiotics. I think they are part of the reason that my body collapsed.
     
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