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Help -- positive result on Advanced Laboratory Testing test

Discussion in 'Lyme Disease and Co-Infections' started by el_squared, Jul 27, 2016.

  1. el_squared

    el_squared

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    Seeking perspective on some test results I got. I will talk to my doctor soon but in the meantime I'm reading the results and they appear to be a diagnosis of Lyme Disease but I'm not sure.

    I just got tests back from Advanced Laboratory Services. The preliminary tests were negative, at 10 days and 8 weeks, but I now appear to be positive at 16 weeks.
    It says: the Poly Borrelia culture shows: Growth. It says culture was positive for spirochetes at 16 weeks. "These spirochetes strained positive with polyclonal antibody immunochemical strain for Borrelia species."

    That's all it says.

    What does this mean? Could this be an "answer" -- meaning why I have chronic fatigue, pain, neurological problems (jerks and spasms). Would this be a small part of the picture or a big part? I know there's a lot of controversy around these "alternative" tests and the idea of "chronic" Lyme. I was negative on the western blot test.

    Any thoughts appreciated!
     
  2. zzz

    zzz Senior Member

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    Oregon
    It's certainly possible. Neurological problems of the type you describe tend to be much more common among tick-borne diseases than ME/CFS.
    If the test is indeed accurate, it would be a very big part of the picture, and possibly the whole thing.
    Standard tests for Lyme and other tick-borne diseases tend to be notoriously inaccurate, generally failing on the side of far too many false negatives. I'm not familiar with Advanced Laboratory Services, so I can't comment on their tests.

    As for chronic Lyme, or other chronic tick-borne diseases, there is more than enough evidence to regard them as real. This is just another case of the medical establishment's being far behind the science.
    Standard western blot tests have a very high rate of false negatives.
     
  3. Jonathan Edwards

    Jonathan Edwards Senior Member

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    I would be very wary of a lab that has Borrelia culture as the top subheading on its website. It also has a 'paper' in a journal I have never heard of supposedly indicating that they have a special culture technique (i.e. they claim that nobody else can get the results they get - not too encouraging). They seem to have found Borrelia at 16 weeks in 94% of Lyme patients' sera. That is very hard to believe, since presumably some people infected with Borrelia will have cleared any circulating organisms. Moreover, culturing from serum is weird because serum is the fluid left after blood clots and clotting should clump out pretty much all bacteria. If cultures are made on blood they are normally done on whole blood.

    To be honest this looks entirely phoney. I may be wrong, but I suspect your test means nothing.
     
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  4. msf

    msf Senior Member

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    If you are worried that Lyme is a possibility, and you have the money, why not get other Lyme tests, and tests for co-infections done? If you are positive for Ehrlichia on a standard test, say, the Lyme result will start to seem more credible, and if you are positive for Lyme on a different standard WB test (they are different for different regions), then it will seem even more credible.
     
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  5. el_squared

    el_squared

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    Everything negative on Western Blot. Stanford CFS clinic only believes in Western Blot. But this functional MD, of Holtorf Medicine, had me take this Advanced Laboratory Services test (sorry I got the name wrong in the title of this thread). I'm seeing the doc in a couple hours. Maybe she'll suggest I take another test to help confirm, but this one appeared to come back positive. This company has been under fire for not being transparent with its methods and data. But my doc is an MD and she believes in it. Don't know who to trust.
     
  6. msf

    msf Senior Member

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    Like I said, maybe try testing for co-infections? And different WBs give different results, so it may be a good idea to get a different one done.
     

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