Hi all,
had an unpleasant night at the ER when i somewhat suddenly (after short walk) sat, and really just couldn't get up. Was so very very lightheaded--and so extraordinarily weak...Sat in the middle of a crowd and thought -- should i just wait this out, or is it time to call 911? (you know that conundrum...decision which has to be made of course when super light headed and difficult to focus. oye. I'm sure many of you have been there before!) since sitting was not ameliorating the escalating situation, got ride to hospital, course they couldn't figure out what was up, but zonked out for 5 hrs there seemed to help somewhat.
Something extra has been up the last 4 days-- no viral anything--but I think perhaps triggered by, of all things, not using ambien. That's the only trigger i can think of...(i've the lowest dose of ambien off and on, and recently more so...then stopped this week.)
That (or god knows what else) triggered some neurological symptoms Thatwhich I've never had-- like the feeling of body being distant from brain (like poor signaling...as if, when scratching my arm, the sensations just seem sort of far away, or maybe just dulled). Very unpleasant. I was told this is a "dissociative phenomenon"--which can be triggered by many things). So that in addition to Extreme light headedness.
Presently I really can't walk much at all outside the house...(which has happened to me, but only when with "extra" infection).
Well there's much more to this particular episode, but of course too exhausted and unfocused to get into details...! so I will just ask the questions, because i do wonder if this is heart related, or other OI:
--) is a make-shift tilt-table test-- as in, lie down for x minutes, then stand up directly for x minutes (while nurse checks pulse)-- Is this enough to exclude OI?
I had that test done at a check up this year--essentially it's a less sophisticated tilt table I think... My heart rate was fine in that scenario.
For me it's hard to tell the difference between a post-exertional malaise type deal (all over body suddenly ughhhh after 20-40 minute walk presently)--
VS., this particular thing (this week) feels much more "brain" focused-- just extremely light headed and maybe heavy-bodied, and I do feel better lying down.
Qs:
-->So I think my PCP ruled out POTS based on the simple test above-- but is that sufficient?
-->Is the other variety of OI (NMH?)--does that only happen after a bit of exercise?
--> Can anyone from New England recommend where to go to test the heart? and/or ANS tests in general?
Can't help but be concerned this is something more serious. Of course, of course, would love some explanation.
While on that note: --> anybody else triggered by a mere stopping of ambien? (i was on lowest dose.. just 5mg)
Thanks all!! and pls forgive the ramble--4am here, but thought worth a shot to see if any opinions..
Here's to a world free of light-heads...!
Htree
had an unpleasant night at the ER when i somewhat suddenly (after short walk) sat, and really just couldn't get up. Was so very very lightheaded--and so extraordinarily weak...Sat in the middle of a crowd and thought -- should i just wait this out, or is it time to call 911? (you know that conundrum...decision which has to be made of course when super light headed and difficult to focus. oye. I'm sure many of you have been there before!) since sitting was not ameliorating the escalating situation, got ride to hospital, course they couldn't figure out what was up, but zonked out for 5 hrs there seemed to help somewhat.
Something extra has been up the last 4 days-- no viral anything--but I think perhaps triggered by, of all things, not using ambien. That's the only trigger i can think of...(i've the lowest dose of ambien off and on, and recently more so...then stopped this week.)
That (or god knows what else) triggered some neurological symptoms Thatwhich I've never had-- like the feeling of body being distant from brain (like poor signaling...as if, when scratching my arm, the sensations just seem sort of far away, or maybe just dulled). Very unpleasant. I was told this is a "dissociative phenomenon"--which can be triggered by many things). So that in addition to Extreme light headedness.
Presently I really can't walk much at all outside the house...(which has happened to me, but only when with "extra" infection).
Well there's much more to this particular episode, but of course too exhausted and unfocused to get into details...! so I will just ask the questions, because i do wonder if this is heart related, or other OI:
--) is a make-shift tilt-table test-- as in, lie down for x minutes, then stand up directly for x minutes (while nurse checks pulse)-- Is this enough to exclude OI?
I had that test done at a check up this year--essentially it's a less sophisticated tilt table I think... My heart rate was fine in that scenario.
For me it's hard to tell the difference between a post-exertional malaise type deal (all over body suddenly ughhhh after 20-40 minute walk presently)--
VS., this particular thing (this week) feels much more "brain" focused-- just extremely light headed and maybe heavy-bodied, and I do feel better lying down.
Qs:
-->So I think my PCP ruled out POTS based on the simple test above-- but is that sufficient?
-->Is the other variety of OI (NMH?)--does that only happen after a bit of exercise?
--> Can anyone from New England recommend where to go to test the heart? and/or ANS tests in general?
Can't help but be concerned this is something more serious. Of course, of course, would love some explanation.
While on that note: --> anybody else triggered by a mere stopping of ambien? (i was on lowest dose.. just 5mg)
Thanks all!! and pls forgive the ramble--4am here, but thought worth a shot to see if any opinions..
Here's to a world free of light-heads...!
Htree