Jennifer J
Senior Member
- Messages
- 997
- Location
- Southern California
Hi. I'm frustrated and at a loss again with how to go about things so I can get the treatment I need and not be stereotyped.
For many reasons, I need a new endocrinologist. My Endocrinologist's progress notes on me are shocking.
I thought she was kind, compassionate and intelligent. That she heard me and understood what was going on medically with me. She never gave me any indication that she didn't until I read my progress notes. Why did she just nod and agree, and tell me one thing and then writes other in my chart? I'm a thoughtful, intelligent, rational person that can handle honest dialogue about what is going on with me medically. Pleasant and intelligent are words a few doctors have used to describe me.
My experience is that if I write something to include in my medical chart, it will not be included in whatever is being sent out. The doctor's office chart has a section for different correspondence and protocols about this. (This also happened when fighting for SSDI, none of my notes which were given to the doctor each visit was sent into them, which I didn't know until years into the process.)
Also, I'm concerned that it makes it look like I could be a problem if I'm saying something in contrast to what the doctor has noted, so the doctor I'm being referred to may not accept me or will form this preconceived notion of who I am.
As we do, I have so little cognitive and physical energy and ability to do this. I'm pouting and waahing again that I have to deal with this when so much other needs to take place. I need to go about this the best and most concise way.
I'm so thankful for this site, for all of you (even though I'm sorry that you are living with this, my heart goes out to you all), and thankful for being able to reach out here and be there for each other along the way.
Does anyone have suggestions? Thank you.
For many reasons, I need a new endocrinologist. My Endocrinologist's progress notes on me are shocking.
I thought she was kind, compassionate and intelligent. That she heard me and understood what was going on medically with me. She never gave me any indication that she didn't until I read my progress notes. Why did she just nod and agree, and tell me one thing and then writes other in my chart? I'm a thoughtful, intelligent, rational person that can handle honest dialogue about what is going on with me medically. Pleasant and intelligent are words a few doctors have used to describe me.
My experience is that if I write something to include in my medical chart, it will not be included in whatever is being sent out. The doctor's office chart has a section for different correspondence and protocols about this. (This also happened when fighting for SSDI, none of my notes which were given to the doctor each visit was sent into them, which I didn't know until years into the process.)
Also, I'm concerned that it makes it look like I could be a problem if I'm saying something in contrast to what the doctor has noted, so the doctor I'm being referred to may not accept me or will form this preconceived notion of who I am.
As we do, I have so little cognitive and physical energy and ability to do this. I'm pouting and waahing again that I have to deal with this when so much other needs to take place. I need to go about this the best and most concise way.
I'm so thankful for this site, for all of you (even though I'm sorry that you are living with this, my heart goes out to you all), and thankful for being able to reach out here and be there for each other along the way.
Does anyone have suggestions? Thank you.
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