Invest in ME Conference 12: First Class in Every Way
OverTheHills wraps up our series of articles on this year's 12th Invest in ME International Conference (IIMEC12) in London with some reflections on her experience as a patient attending the conference for the first time.
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Help needed in Utah, URGENT ADVOCACY ACTION NEEDED

Discussion in 'Action Alerts and Advocacy' started by *GG*, Feb 7, 2011.

  1. *GG*

    *GG* senior member

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    Concord, NH
    UMDF members in the state of Utah are encouraged to contact their state representatives to ask them to support or co-sponsor HJR 35. HJR 35 will establish a mitochondrial disease awareness week in the state of Utah. HJR 35 was successfully introduced by Rep. Kenneth W. Sumsion at the request of Utah UMDF Member Marie Nuccitelli.

    To find your state representatives, click here. http://le.utah.gov/house/DistrictInfo/newMaps/State.htm?tr=y&auid=7735335

    Phone your representative's office and urge their support of HJR 35.

    "Every 30 minutes, a child is born who will develop a mitochondrial disease by age 10."
    For information on symptoms and how mitochondrial diseases affect both adults and children, visit www.umdf.org

    The United Mitochondrial Disease Foundation
    8085 Saltsburg Road, Suite 201 | Pittsburgh, PA 15239
    Toll-Free: 888-317-8633 | F: 412-793-6477 | info@umdf.org


    To promote research and education for the diagnosis, treatment and cure of mitochondrial disorders
    and to provide support to affected individuals and families.
     

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