Phoenix Rising: The Gift That Keeps on Giving All Year Long
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Help needed! : Building Alliances

Discussion in 'Action Alerts and Advocacy' started by awol, Aug 14, 2010.

  1. awol

    awol

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  2. awol

    awol

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    Reposting this from an earlier thread:


    As is clear from the recent patent application submitted by WPI researchers and collaborators, the list of diseases in which XMRV is possibly implicated is very very long:

    Prostate Cancer
    ME/CFS
    Atypical MS
    Fibromyalgia
    Autism
    Bipolar Disorder
    Alzheimers
    ALS
    Lymphoma
    Leukemia
    Female Cancers
    ................... and more.

    ALL of these possible associations need to be investigated and that will take lots of research. In the meantime, the public needs to be aware that the virus is out there, is no doubt dangerous (there is NO SUCH THING as an infectious retrovirus that is NOT dangerous) and that research is badly needed to find effective testing and screening methods to stop its spread and protect the blood supply. The XMRV story is not just about us!

    Therefore, we are trying to put together an outreach team as part of Project ENOUGH!!! These people will try to build alliances with patient organizations and forums for other diseases to design actions to ensure that the necessary research happens, and soon!

    I hope there are some people out there who have some small awareness of one or more of these diseases who can offer to help reach out to these related patient groups.
     
  3. awol

    awol

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    This team is the one still desperately in need of members. We have some people for autism. That's about it. So please, if you know ANYTHING about any of these diseases or know someone that does, or are just interested in helping out in this area, send word!
     

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