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Help Compile List of ME/CFS Charities Outside US

Discussion in 'Fundraising' started by Merry, Aug 14, 2012.

  1. Merry

    Merry Senior Member

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    Columbus, Ohio, USA
    Right now we need info for the upcoming US contest Chase Community Giving, which begins the 6th of September, but this information would certainly be nice to have for future projects.

    Here's what frenchtulip wrote (at post #79)
    http://forums.phoenixrising.me/inde...ntial-chase-nominees.17798/page-4#post-287645


    If individuals would like to take a country or continent, find the ME/CFS org's, URL's, and email addresses, that would be really helpful. Perhaps the individuals could also monitor the org's websites and/or Facebook pages to see if the Chase Contest info we will be sending gets posted. If not, we could perhaps post it on the organizations' Facebook pages as has been done in the past (Plan B).

    There are various lists of ME/CFS org's. Here are two:
    http://www.mecfsforums.com/wiki/Organizations_for_ME/CFS
    http://www.cfsknowledgecenter.com/support-groups.php
    If you know of others, would you please post.

    I started on Australia tonight. I will be working on Australia and New Zealand. We may need to stick mainly to the English-speaking countries unless we can find translators.
    WillowJ, L'engle and frenchtulip like this.
  2. frenchtulip

    frenchtulip Senior Member

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    Thanks, Merry!
    L'engle likes this.
  3. user9876

    user9876 Senior Member

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    In the UK there is the Tymes Trust (The Young ME Sufferers Trust)
    http://www.tymestrust.org/

    By Post
    Tymes Trust
    PO Box 4347
    Stock
    Ingatestone
    CM4 9TE​
    Merry likes this.
  4. Aileen

    Aileen Senior Member

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    Canada
    I have a very large list of organizations with email, website, facebook and twitter as applicable but not on this computer. I guess I could email it to myself to get it on this one. It is in a table so I'm not sure if the whole thing could be uploaded here (doubtful) but I could probably figure out a way to do it in pieces. Going in for a colonoscopy tomorrow so I may be away for several days.

    Just remembered, the reason I have all this info is because I was gathering it for cfsKnowledgeCenter's site. Go there for 2 lists -- support groups and worldwide links (tabs under the photo)
    Merry, WillowJ and frenchtulip like this.
  5. frenchtulip

    frenchtulip Senior Member

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    Here is a list taken from another site. I think it is okay to post. I have tried to remove anything that looked like a private email address or phone no. Note: Some of the info below may not be current.

    International

    International Association for CFS/ME, 27 N Wacker Drive Suite 416, Chicago, IL 60606

    Australia National
    AustraliaRegional
    • CFS Society of Western Australia, 92 Powell Street, Joondanna, Perth, Western Australia 6060, tel 61-09-483-6667
    • Darwin ME/CFS Society
    • ME/CFS Australia (Tasmania)
    • ME/CFS Society of South Australia, PO Box 383, GPO, Adelaide, South Australia 5001, tel 61-8-373-2110
    • ME/CFS Society of New South Wales (ME/CFS Society of NSW), PO box 449, Crows Nest, NSW 2065 tel 61-2-439-6026, email mesoc@zip.com.au
    Canada
    • M.E. Association, 246 Queen Street, Suite 400, Ottawa, Ontario K1P 5E4, tel 1-613-563-1565, email info@mecan.ca
    Europe
    Belgium
    • Ms. Alice Vertomme, Dorp 7, 3221 Nieuw Rode
    Denmark
    • ME/CFS Foreningen (Danish ME/CFS Association), Raadhustorvet 1 2.sal DK-3520 Farum. Tel 45 4495 9700 Mon, Wed, Thu 10:00-14:00 and Thursday also 16:00-18:00 - email: mail@me-cfs.dk http://www.me-cfs.dk/Forside
    France
    Germany
    • Foerderverein fuer CFS/CFIDS/ME-Erkrankte, Fatigatio e. V., Postfach 410261, D-53024 Bonn, tel 49 228 66-02-33, email fatigatio@t-online.de
    Italy
    • C.F.S. Associazione Italia, Segreteria: Via Moimacco 20, 33100, Udine cfs@cro.it
    Malta
    Netherlands
    • Chronisch Vermoeidheid Syndroom (ME Stichting), Robert Scottsstraat 4, 1056 AX Amsterdam, tel 31 (0) 20-6895162 (maandag, woensdag, vrijdag 10-12 uur) http://www.me-cvs-stichting.nl/
    • ME Fonda, c/o Hanneke Los, Pres Kennedylaan 745, 1079 MR Amsterdam, tel 31 020 6445566, email mef@xs4all.nl
    Norway
    Spain
    • Fibromyalgia and Chronic Fatigue Syndrome Foundation, Dr Anna Cuscó - Executive President, Calle Joan Güell, 184 Local 27, 08028 Barcelona, Spain http://www.fundacionfatigo.org/
    Sweden
    Switzerland
    India
    New Zealand
    South Africa
    • ME Association of South Africa, Arlene Vermaak, PO Box 1802, Umhlanga Rocks, 4320, South Africa
    UK
    Ireland

    Irish M.E. Trust info@imet.ie http://www.imet.ie/
    Merry and Enid like this.
  6. Enid

    Enid Senior Member

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    UK
    Great work frenchtulip - that is good to see in one place and thanks Merry for starting.
    Merry likes this.
  7. Merry

    Merry Senior Member

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    Columbus, Ohio, USA
  8. frenchtulip

    frenchtulip Senior Member

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    Great questions, Merry! Let me run some of these questions by the admin. group on FB. I tend to think it would be good to have a trial run with the email approach and let org's know that the contest--worth potentially very big bucks--is approaching. What does everyone else think? I have thought it might be a good idea to post on co-cure as well. It might be easier for the FB Fundraising Group members to monitor the orgs' FB pages. Good point! Thanks.
  9. Merry

    Merry Senior Member

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    Ok, thanks, frenchtulip. I am willing to email organizations. I could start with Canada unless someone else here on PR -- a Canadian citizen perhaps? -- would like to contact Canadian organizations.

    I'll wait a few days in case you have further suggestions.
  10. taniaaust1

    taniaaust1 Senior Member

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    Sth Australia
    The "ME/CFS Society of South Australia" is the same as the ME/CFS Australia (SA)... so is appearing twice on that list.
    Merry likes this.
  11. Cort

    Cort Phoenix Rising Founder

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    Raleigh, NC
    It took us a little while but we've submitted our application and our profile page should show up shortly. We'll soon begin a campaign to support PR and other ME/CFS organizations to win the big bucks:)
    Enid, Merry and frenchtulip like this.
  12. frenchtulip

    frenchtulip Senior Member

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    That's great, Cort! Thanks for letting us know.
  13. Cort

    Cort Phoenix Rising Founder

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    Raleigh, NC
    Thanks...Among other things we've been waiting for guidance from Chase on the proper financial documents to attach...it took weeks...
  14. Merry

    Merry Senior Member

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    :( Sorry for trouble, Cort. I hope you'll get some money for your efforts. At the very least, you should end up with a share of the $2.5 million grant.
  15. Merry

    Merry Senior Member

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    Columbus, Ohio, USA
    Updated info on Canadian organizations:

    FM-CFS Canada
    website: fm-cfs.ca
    email: office@fm-cfs.ca

    ME Association of Ontario
    website: www.meao.ca
    email: info@meao.ca

    The National ME/FM Action Network
    website: mefmaction.com
    email: mefminfo@mefmaction.com

    Nightingale Research Foundation
    website: www.nightingale.ca
    email: info@nightingale.ca

    Invisible Disabilities Association of Canada
    website: www.nsnet.org/idacan
    email: idacan@ns.sympatico.ca


    These organizations have now been notified of the upcoming Chase Community Giving Contest
    Enid and Nielk like this.
  16. Merry

    Merry Senior Member

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    Columbus, Ohio, USA
    Updated info on UK organizations:

    Action for M.E.
    website: http://afme.org.uk
    email: info@afme.org.uk

    25% ME Group
    website: http://www.25megroup.org
    email: enquiry@25megroup.org

    Association of Youth with ME (AYME)
    website:http://www.ayme.org.uk
    email: info@ayme.org.uk

    CFS Research Foundation
    website: http://www.cfsrf.com
    email: cfsresearch@btconnect.com

    Invest in ME
    website: http://www.investinme.org.uk
    email: info@investinme.org

    MEActionUK
    website: http://www.meactionuk.org.uk
    email:?

    The ME Association
    website: http://www.meassociation.org.uk
    email: meconnect@meassociation.org.uk

    The National ME Centre
    website: http://www.nmec.org.uk
    email: nmecent@aol.com

    ME North East
    website: http://www.menortheast.org
    email: info@menortheast.org

    ME Research UK
    website: http://www.meresearch.org.uk/index.html
    email: meruk@pkavs.org.uk

    MESH Nottingham
    website: http://meshnottm.limewebs.com
    email: meshnottm@gmail.com

    Welsh Association of ME and CFS Support
    website: http://www.wames.org.uk
    email: helpline@wames.org.uk

    Blue Ribbon for the Awareness of ME
    website: http://brame.org
    email: info@brame.org

    Tymes Trust
    website: http://tymestrust.org/contactus.htm
    email: send via contact box at website


    These organizations have been contacted about the Chase Community Giving Contest except for two. The ME Association I was told does not participate in fundraising for other organizations, and I when I clicked on the email link at the MEActionUK website, what came up was a Google sign in page.

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