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Lessons from ME/CFS: Finding Meaning in the Suffering
If you're aware of my previous articles here at Phoenix Rising then it's pretty clear that I don't generally spend my time musing upon the philosophy of the disease. I find it better to spend my time reading research and trying my best to break it down to its core elements and write...
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Help a journalist: The psychiatric study hall of shame

Discussion in 'General ME/CFS News' started by thegirlwiththedog, Nov 23, 2013.

  1. thegirlwiththedog

    thegirlwiththedog

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    OK guys, help me out. I'm working on a story about the IOM contract, and I want to provide links to the worst studies out there about CFS, ones suggesting that CFS is related to or caused by underlying psychiatric problems, along with other studies refuting them. What I've got so far is the trauma study (http://www.ncbi.nlm.nih.gov/pubmed/17088506) and the personality disorder study (http://www.karger.com/Article/FullText/319312), and I've got a couple of papers refuting the personality disorder study (http://www.ncbi.nlm.nih.gov/pubmed/23065435, http://www.ncbi.nlm.nih.gov/pubmed/12670610) but none so far refuting the trauma study. Any suggestions, either for more ridiculous studies (with refutations) or for refutations of the trauma study?
  2. lnester7

    lnester7 Seven

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    I remember one about child abuse prevalence and CFS.
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  3. SickOfSickness

    SickOfSickness Senior Member

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    A paper for refutation of trauma: http://www.ncbi.nlm.nih.gov/pubmed/11708672
    But I did not read the paper, just the abstract.
    I'm surprised at their result because I think trauma does cause more illness as an adult.

    Another thing which you may include is that many illnesses are higher if you have trauma as a child. These papers show that: http://www.ncbi.nlm.nih.gov/pubmed/19188532
    http://www.ncbi.nlm.nih.gov/pubmed/15259836

    That helps to show that it's not psychological because people get diagnosed with more physical problems. People who think it's psychological think that the trauma leads to complaining of more symptoms.

    I found all 3 of these paper links on the Speak Up About M.E. blog when I was looking for a refutation of the trauma paper you linked.
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  4. SickOfSickness

    SickOfSickness Senior Member

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    You may want to include a horrible paper about how "CFS" patients improved with exercise, and refutation paper about how we have physiological abnormalities, exercise can harm us long-term, etc.

    Because the people who think it's psychiatric thing we are just out of shape, or lazy.
    Last edited: Nov 23, 2013
  5. alex3619

    alex3619 Senior Member

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    There was a big Belgian review of the use of CBT/GET for ME and CFS over several years. I don't have a link handy. This was half again the size of the PACE trials. What they showed was a worsening of physical function in the real world after CBT/GET. There is no objective evidence of substantial improved physical function after these kinds of interventions, but there are studies with objective evidence of either no improvement or a worse physical capacity after CBT/GET. Many of these studies have been reviewed or discussed on this forum, its a question of finding someone who has a link handy or doing a lot of searching.
  6. Esther12

    Esther12 Senior Member

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    re trauma: I've seen it suggested the pretty much every retrospective study of childhood trauma and 'a health problem' ends up being positive (heart disease, cancer, mental health, etc). It could be that those with health problems are more likely to look back negatively upon their childhood, or it may be that childhood trauma can affect the way in which bodies develop and grow. Or that there are confounding factors - maybe those who are malnourished are more likely to also have traumas? Maybe those seen as being 'weak' are more likely to be abused, on top of having genetic problems.

    Have you looked into any of the misrepresentations around PACE?

    I'm sure that there are a few good summaries around for that.
    Last edited: Nov 23, 2013
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  7. thegirlwiththedog

    thegirlwiththedog

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    Yes, PACE and its brethren are biggies, but I'm talking about them in a different context, as a way of describing how critical it is to use a decent case definition (though of course there were many problems with PACE). So now I'm looking for other psychologizing type papers.

    Thanks for those refutations of the trauma thing, SickOfSickness. Very helpful.

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