You are unusual. Most people that I have "met" with ME/CFS are "turned in" on themselves and are always taking internal inventories and measurements of function. Because of this, they can give a more precise answer to a question regarding how a particular supplement or medication has affected them. Some people here are journaling their responses and everyone to the best of their ability try to separate supplement trials so that they know (to the best of their ability) what their response is. Each of us is an n=1 experiment. You seem to have a number of serious health problems and your journey is perhaps unique. I too, have not found a "kindred spirit" - someone who seems to be on the same path as me.