Phoenix Rising tells QMUL: release the PACE trial data
Mark Berry, Acting CEO of Phoenix Rising, presents the Board of Directors’ open letter to Queen Mary University of London (QMUL) urging them to release the PACE trial data, and hopes that other non-UK organisations will join British charities in the same request...
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heat+cool sensation switch continuously

Discussion in 'General Symptoms' started by kisekishiawase, Apr 13, 2018.

  1. kisekishiawase

    kisekishiawase sad

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    southeast asia
    From years ago sometimes for minutes i feel heat - chill - heat -chill sensation on my body. Continously for couple of minutes and each heat/chill last short like 2 seconds and it goes in a row. Its like a blinking light or something.

    Does anyone know any idea what it is/have any experience?
    I just realized now that this is uncommon and ive asked some people but they dont know about it.
     
    Last edited: Apr 14, 2018
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  2. kisekishiawase

    kisekishiawase sad

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    No one knows?
     
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  3. 5150

    5150 Senior Member

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    I don't know. but we have a good doctor who's a member and might share his opinion.

    @Jonathan Edwards

    Dr. , are you able to help this person with her question? thank you.
     
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  4. kisekishiawase

    kisekishiawase sad

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    Thank you for your suggestion. :thumbsup:
    I remember i have read his posts before.


    I thought there are some people here who know or have experience in it.
     
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  5. 5150

    5150 Senior Member

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    Hello Forum members:
    Is anyone able to help this young person> She needs immediate attention. We have a special duty to our younger members, imo

    Kisekishiawase: why don't you try "@Jonathan Edwards" yourself? maybe he won't answer unless requested by the patient-in-need herself... idk.
    -----------------------------------------------------------------------------------------------------------------------------------------
    Does anyone know any idea what it is/have any experience?
    I just realized now that this is uncommon and ive asked some people but they dont know about it.[/QUOTE]
     
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  6. starlily88

    starlily88 Senior Member

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    Baltimore MD
    I had left this site for a bit - due to getting too sick to post - when I came back 2018 I think I was told that Jonathan Edwards was no longer on this site. Ask Shoshana or one of the moderators (some of them left also).

    I do get chills that will last for hours. And I do get overheated also but not in a 2 second period - might be during 1/2 hour period. My CFS doctor told me the disease affects one's brain first, it is a virus.
    In particular - the gland (adrenal, thymus??) I forgot - but it is part of brain that keeps regulates our body temperature
    so we are reacting correctly- that temperature regulator in our brain does not work.

    With CFS - that temp control is broken. So we can't regulate our body temperature - thus we are freezing, then hot.
    It is very annoying, uncomfortable, and can drive one crazy. I don't know if this has anything to do with "sad's" problem but I hope this helps. Starlily88
     
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  7. kisekishiawase

    kisekishiawase sad

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    southeast asia
    @5150 thank you for your help :)


    @starlily88 i see. Its unfortunate that some people not on this site anymore.

    Thats what confused me cause its switching like blinking light.

    So this is possibly due to the CNS?
    I dont know if its the body temperature or just what i feel. Or like flush or something. Or maybe like inflammation. But it can happen a couple times a day for minutes.

    I remember readin about thymus but it said that the organ doesnt needed anymore when we got older. :confused:
     
  8. caledonia

    caledonia

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    I get things like this, but the switch is slower, not rapid.

    Your body temperature is regulated by the thyroid and adrenals. Those are regulated by the hypothalamus and pituitary. So it could be some kind of HPAT axis issue.

    Then there are the hot flashes of menopause which have to do with sex hormones.

    I've had those the past year or so, and those are more rapid, but I don't get a chill with it.

    It would be interesting to take your temperature with a thermometer during the episodes and see if your body temperature is actually changing.

    You can also use Dr. Rind's temperature graph to figure out if there is a thyroid and/or adrenal issue.

    http://www.drrind.com/therapies/metabolic-temperature-graph
     
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  9. starlily88

    starlily88 Senior Member

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    Baltimore MD
    Caledonia thanks for the correction. AAHH - the thyroid and adrenals regulate body temperature. I have not had the ability to keep my body temperature at its normal (for me) state. My temp is so low, I cannot feel my feet, hands (do have Raynaud's) I have to take hot bath just to stop the chills.

    Now found out my thyroid levels are low, and I have anemia - no wonder I can't keep warm.
    I am freezing even if it is 80 degrees in my flat.
    Thank you for wonderful article by Dr. Rind.

    Sorry for your hot flashes - somehow I avoided them, so keep your chin up.

    I have met with tremendous resistance by any of my drs to run Complete thyroid test panel, including Free T3, Free T4, TPOab antibodies, TGab (hashimoto's screen). I don't get it - since I have subacute thyroiditis, and now am much worse.

    Found a lab that will run most any blood tests without scripts - costs a bit so may do this.
    Starlily88
     
  10. starlily88

    starlily88 Senior Member

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    Baltimore MD
    @starlily88 i see. Its unfortunate that some people not on this site anymore.
    Thats what confused me cause its switching like blinking light.
    So this is possibly due to the CNS?
    I dont know if its the body temperature or just what i feel. Or like flush or something. Or maybe like inflammation. But it can happen a couple times a day for minutes.
    I remember readin about thymus but it said that the organ doesnt needed anymore when we got older. :confused:[/QUOTE]

    If you are freezing then hot in a few seconds - I would see a neurologist possibly, or endocrinologist, or start at a general practitioner doing blood work on your Vitamin D, B12, and magnesium levels. Having a chronic illness is very hard - because most drs are truly not familiar with the odd symptoms that occur in some of us.

    It is quite frustrating I know - especially since this is affecting your functioning. I assume you have been in the hospital Emergency room - for help - when I am in severe condition I do go to emergency - and I am surprised at what they find out - with all the equipment right at their fingertips.

    All of us at least me - have had to go to so many drs to find out what each new disease is - then I find out there is nothing to be done about it anyway - but I don't quite understand how cold/hot you get, how long its happening, and what diseases you have. So try to find a few different drs to go to - to get help.
    Starlily88
     
  11. caledonia

    caledonia

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    Cincinnati, OH, USA
    Luckily, they're on the mild side, so I notice them, but they're not too bothersome. :)
     
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