1. Patients launch a $1.27 million crowdfunding campaign for ME/CFS gut microbiome study.
    Check out the website, Facebook and Twitter. Join in donate and spread the word!
9th Invest in ME International ME Conference, 2014 - Part 2: Pathogens and the Gut
Mark Berry continues his series of articles on the 9th Invest in ME International ME Conference in London, with the emphasis shifting from autoimmunity to pathogens and the gut ...
Discuss the article on the Forums.

Heart Rate Monitor is Awesome!

Discussion in 'Problems Standing: Orthostatic Intolerance; POTS' started by Sparrow, May 8, 2012.

  1. SOC

    SOC Moderator and Senior Member

    Messages:
    5,062
    Likes:
    5,734
    USA
    So you have serious OI issues? I wonder if there's a way to get that treated by your local GP. That might be enough to enable you to travel to a specialist eventually. :)
  2. Sparrow

    Sparrow Senior Member

    Messages:
    662
    Likes:
    758
    Canada
    My GP is of the (mistaken) impression that if what I have is CFS, then it cannot also be POTS. Therefore, since I have CFS, I do not have POTS. (sigh) I don't want to be too pushy about it right now, because my insurance stuff is still a little up in the air, and I don't want to do anything to rock the boat too much. We're on track to try to get me some testing eventually, though. And in the meantime I am getting gradually better. Just a bit slowly for my taste. ;)
  3. mobyjoby

    mobyjoby

    Messages:
    60
    Likes:
    14
    I really feel for you Sparrow - I hope you get some certainty with your insurance soon so that you can start to get your GP to work a bit harder for youo_O.
  4. Sallysblooms

    Sallysblooms P.O.T.S. now SO MUCH BETTER!

    Messages:
    1,767
    Likes:
    326
    Southern USA
    Sorry your doctor doesn't understand. Very odd. Easy for him to learn, just google!:confused:
  5. SOC

    SOC Moderator and Senior Member

    Messages:
    5,062
    Likes:
    5,734
    USA
    What?! o_O That doesn't even make sense. Where do they get these ideas? OI problems are incredibly common in ME/CFS. It's almost definitional. Sheesh. Any hope of taking him/her part of the CCC or ICC and pointing that out?
  6. soxfan

    soxfan Senior Member

    Messages:
    654
    Likes:
    210
    North Carolina
    I just received my heart rate monitor in the mail. I ordered a Timex one which is also a watch. I really wanted to find out how high my heart rate goes when I am at working standing for 6 hours. I am especially interested to see what it is doing when I break out in those massive sweats.
    Resting my rate in around 60-65 no higher (sitting). When laying in bed it goes down into the 50's. I walk everyday and am in pretty good shape so maybe that is why.

    Seeing my doctor on the 29th and will have a discussion about all this....
  7. Sparrow

    Sparrow Senior Member

    Messages:
    662
    Likes:
    758
    Canada
    Thanks for the support, guys. :) Nice to know I'm not alone in my reaction. o_O

    My doctor is well-intentioned, just misinformed. So many things seem like common knowledge to me now - I forget sometimes how little of this information has actually trickled down to the front lines. But I should be getting a consult with a more knowledgeable group at the hospital soonish, and they should be able to pass on some useful information to her. I think that will go over a lot easier coming from other doctors than it would from me. The last thing I need right now is to successfully get across to her that I'm having POTS issues and have her decide that means that I no longer have CFS. :eek: Life would be so much easier without having to worry about disability insurance...
    SOC likes this.

See more popular forum discussions.

Share This Page