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Gingergrrl The Mestinon was supposed to help with the tachycardia but it's not helping at all. I have slightly high BP most of the time but when I stand it drops and my heart rate goes up to 140's. When this happens I get light headed and my legs go weak and feel like jello my whole body starts jerking with seizure like movements. I fall sometimes fast sometimes slowly but never pass out completely. The worst two falls were once on the drug store I went down and took out a shelf full of merchandise with me (VERY embarrassing) the other I fell outside at home and broke two ribs (VERY painful).
I can get that happening too with the dizziness, my legs and with the jerking seizure like movements (one of my support workers almost was hit the face not too long ago cause my arms spasmed so badly that my hands and that got flung out). I like yourself can fall slow or go down hard like a rock. I have passed out thou. Due to all this, I once had a hard fall into the pharmacist window which brought everyone running to see if I was okay. I fortunately havent broke any body parts so far in my falls except spained my ankle in one of those falls (I fell onto the ankle) and ending up with lots of bruises.
i dont usually get short of breath but I have got chest pains, very bad on several occassions (felt like I was having a heart attack) due to the ME or the dysautonomia. Your chest pain thou seems different to mine, mine has usually occurred when Im up doing things, I cant remember it ever occurring while laying down.
I strongly suggest you try to get onto a different drug for the POTS seeing the one you have isnt working. Im on Florinef which is the most common drug used for POTS (my CFS specialist said that not many of his POTS patients have responded well to beta-blockers for it). Im also on Clonodine as I get high BP spikes thou mine can fall too but on rarer occassion.