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Hearing loss

Discussion in 'General Symptoms' started by JoanDublin, Jun 14, 2014.

  1. JoanDublin

    JoanDublin

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    Hi there,

    Has anyone experienced hearing loss with ME? My young lad has noticed that his hearing is getting really bad lately. He has ME now almost two years. I just thought he was being a typical teen when he didn't answer me when I was calling up the stairs :) I had noticed lately that he is speaking really loudly and again I thought it might be just his pitch has changed as his voice is breaking. Tonight however he said that he thought his hearing was gone really poor and I did an online hearing test with him and according to the result he has significant hearing loss - about 50% of normal.

    I'm going to take him to see his general doctor shortly about it but I just thought I'd see if anyone else experienced this related to ME?

    Oh and he is also having severe and regular nose bleeds with lots of clots too :(

    Thanks
    Joan
  2. DeGenesis

    DeGenesis

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    I'm sorry for what's happening to your son, Joan. It looks like your son is in both a hypo- and hyper=coagulable state. Off of the top of my head, Anti-phospholipid syndrome AKA Hughes syndrome is known to cause this. There are also a whole host of rare blood disorders that can cause this.

    I would take a look at Hughes Syndrome first though. It is an autoimmune disorder and highly underdiagnosed.

    Sorry I can't advise with his hearing loss.
  3. Sushi

    Sushi Moderator and Senior Member Albuquerque

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    Several have mentioned hearing loss. Have a look here.

    Sushi
    Valentijn likes this.
  4. JoanDublin

    JoanDublin

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    Thanks Sushi. Just read that thread. I'm strongly considering trying to get to see KDM with my young lad but need to make sure I have the finances covered first. Thanks again for pointing me in that direction. I noticed that the thread starter is also from Dublin so would be great to get her advice on the whole process :)
    Valentijn likes this.
  5. Sushi

    Sushi Moderator and Senior Member Albuquerque

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    @JoanDublin

    There are a couple of patients of KDM's in Dublin. I also see him, so if you have any questions, don't hesitate.

    Sushi
    Valentijn likes this.
  6. JoanDublin

    JoanDublin

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    That's great Sushi. Thanks a million. Will get back to you :)

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