The 12th Invest in ME Research Conference June, 2017, Part 2
MEMum presents the second article in a series of three about the recent 12th Invest In ME International Conference (IIMEC12) in London.
Discuss the article on the Forums.

Hear More on Tuesday about NIH study during CDC’s Grand Rounds

Discussion in 'General ME/CFS News' started by Dolphin, Feb 14, 2016.

  1. Dolphin

    Dolphin Senior Member

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    Roseblossom, duncan, Sasha and 2 others like this.
  2. duncan

    duncan Senior Member

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    So they are still using Lyme and FMD.
     
  3. Valentijn

    Valentijn Senior Member

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    Nothing is happening there over the weekend. I'd expect it to take a least a couple days for them to get their shit together.
     
    duncan likes this.
  4. Sasha

    Sasha Fine, thank you

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    The new study that will be discussed as part of this has become hugely controversial, of course.

    I'm sure we'll be all glued to this broadcast, which is later today.
     
  5. Sasha

    Sasha Fine, thank you

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    Bump... on in less than two hours.
     
    Scarecrow and mango like this.
  6. Sasha

    Sasha Fine, thank you

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    Any minute now...
     
  7. Sasha

    Sasha Fine, thank you

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    Argh, has anyone got the link? That link at the top leads to loads of links, none of which seem to be the transmission...
     
  8. Bob

    Bob

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    Should the live stream start soon? Have I got the correct time/day/month/year?
     
  9. Sasha

    Sasha Fine, thank you

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  10. Sasha

    Sasha Fine, thank you

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    Yes! I'm in business with that link.
     
    shannah and mango like this.
  11. mango

    mango Senior Member

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  12. Yogi

    Yogi Senior Member

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    It is the windows media link on the right hand side

    http://www.cdc.gov/cdcgrandrounds/
     
  13. duncan

    duncan Senior Member

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    I have picture but no sound.

    Got it!
     
  14. sarah darwins

    sarah darwins I told you I was ill

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    "Chronic fatigue syndrome is a biologically based illness ..." .

    Good start.
     
    Roseblossom, mango and John Mac like this.
  15. dancer

    dancer Senior Member

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    Sorry, but Lapp's "pillar" of education, where he recommends people go to the CDC website for info ruined his credibility for me.
     
  16. Valentijn

    Valentijn Senior Member

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    Very unimpressed with Dr Lapp. GET (non-curative, responding to symptoms), CBT (the good kind), sleep and pain management ... better than nothing I guess? But still gave the impression we're largely a bunch of head-cases by talking about psychology/psychiatry so much.
     
    Roy S, Roseblossom, Johannawj and 7 others like this.
  17. dancer

    dancer Senior Member

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    He even brought in the "ask about childhood trauma and abuse" as part of the diagnostic interview. sigh.
     
    worldbackwards, Valentijn and Mij like this.
  18. mfairma

    mfairma Senior Member

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    Lapp was the first major doctor I saw. He was nice, but his approach was about as passive as I could imagine, for someone who specializes in the disease. His presentation was fairly poor, with a few bits particularly jumping out. I'm most bummed out by the over all tone he set, but doctors often struggle to communicate effectively. He may find that the exercise stuff he promotes helps, but that hasn't been proven and outsiders will not appreciate the differences between CBT/GET and what he does. His recommendation of the CDC material, as noted, further glosses over the difference.
     
    Ecoclimber, beaker, jimells and 7 others like this.
  19. sarah darwins

    sarah darwins I told you I was ill

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    Yep, Lapp went downhill fast and started repeating just about every wrongheaded piece of 'received wisdom' out there. Any chance he might step aside? He's not going to help.
     
  20. dancer

    dancer Senior Member

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    Dr Unger's chart just showed that mental/emotional function is healthy, but physical is super low. THAT is a good message for listening doctors to hear.
     
    Sean, beaker, Roseblossom and 8 others like this.

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