1. Patients launch $1.27 million crowdfunding campaign for ME/CFS gut microbiome study.
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Hunting down the cause of ME/CFS & other challenging disorders - Lipkin in London
In a talk to patients in London on 3rd September, Dr. W. Ian Lipkin described the extraordinary lengths he and his team are prepared to go to in order to track down the source of an illness, with examples ranging from autism to the strange case of Kawasaki disease.
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Headaches!

Discussion in 'Pain and Inflammation' started by Francelle, Nov 30, 2010.

  1. Francelle

    Francelle Senior Member

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    Victoria, Australia
    Is there anyone here who doesn't have headaches as a symptom of M.E./CFS?
     
  2. Nielk

    Nielk

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    Queens, NY
    It's a good question.
    With me, it's one of my major complaints.
     
  3. kat0465

    kat0465 Senior Member

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    Texas
    Major migrains here! :( so bad they say thats why i have lesions on my Brain....... ( yea right) but yes headaches are common with us and miserable!
     
  4. LaurelW

    LaurelW Senior Member

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    Utah
    Almost never get headaches, but bad PEM.
     
  5. justy

    justy Senior Member

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    U.K
    I dont get what i call headaches anymore, but i do get awful eye pain -always over the left eye as well. It sometimes sort of slides down into my face or up into my head.
    Years ago i used to have crippling migraines and now i think i get silnt ones as i het floaters and feel off but get no headache.
     
  6. InChristAlone

    InChristAlone

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    Ah, to be so lucky as to not have headaches!

    I would actually rather have a simple headache than the severe migraines that I get.

    That interesting that you mention pain over your eyes. Sometimes, and this often leads to my headaches, I feel pain all around my eyes but not actually have my eyes hurt/ache. Almost like I'm getting a sinus headache but that isn't it.
     
  7. jimbob

    jimbob ME/CFS84-XMRV+

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    myrtle beach, s.c.
    24/7 headache sensation for me, due to low blood flow I ass/u/me???
     
  8. Machair

    Machair

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    Chelmsford, England
    I have suffered with headaches since getting ill in 1996. Several migraines too included in there. I think the headaches in my case are due to orthostatic hypotension and lack of blood flow to the brain, as they also lead onto coat hanger pain across the back and shoulders - especially in the morning.
     
  9. meadowlark

    meadowlark Senior Member

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    Toronto, Canada
    Almost daily migraines from onset in 1983 til 2001 ... strange ones which always switched off when a fever began. But I didn't have fevers all that often. I really believed this would never change, but because I've been much more feverish this decade, the migraines come and go now ... an hour here, four hours there, twenty minutes on, twenty minutes off. They are always accompanied by fibromyalgia in my legs.
     
  10. ldhunter

    ldhunter

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    I'm joining in on the headache club. I think it is a combo deal....First, I think a lot of it has to do with elevated cerebral spinal fluid. Many patients with ME/CFS have elevated pressures when they have a lumbar puncture. This pressure increases many symptoms such as light sensitivity, eye pain, headaches, fatigue etc...If it gets out of hand, it can lead to eye problems such as inflammed optic nerves in the eye and damage. On top of that, we then we have the decreased blood flow.

    One of my doctors told me that entoroviruses can, and do, replicate in tissues; including the gut and brain.

    Unfortunately it is one of the horrible symptoms of this crummy disease :(
     

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