Julie Rehmeyer's 'Through the Shadowlands'
Writer Never Give Up talks about Julie Rehmeyer's new book "Through the Shadowlands: A Science Writer's Odyssey into an Illness Science Doesn't Understand" and shares an interview with Julie ...
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having a lot of relief from my cfs symptoms

Discussion in 'General Treatment' started by Americanrealist, Mar 11, 2013.

  1. sianrecovery

    sianrecovery Senior Member

    Manchester UK
    Hi Tristen
    I think there may be a small study underway in the UK on ME and Hep C, but dont quote me - I will try and find out more. Given Hep C is such a persistent virus, and has a strong ability to both change its form and to persist, I guess I'd expect to see the same type of co-morbidity with Hep C that you do with Lyme pathogens. This is a vast subject, and if I were an immunologist, I would be drawn to it because of all the interesting questions it raises about immunity and virology. Certainly when one of my friends went to a recent Hep conference, attending from a patient advocate point of view, she heard speakers say there was an emerging correlation between interferon treatment and CFS.
    For myself, I'd had Hep C for probably 20 years prior to treatment, and other co-morbid genetic conditions, and I was really very ill before I took it. I was better for at least five years afterwards, but in retrospect, I was in an insidious onset situation for the ME. I then got an intestinal parasite, had Hep B vaccinations for work, had a very stressful bit as a carer, and the balance tipped into full time, full on ME. So it was multicausal, and the interferon both helped and harmed.
    If that makes sense. It's not easy to simplify such a complex set of relationships between actions and outcomes.
    South likes this.
  2. Tristen

    Tristen Senior Member

    Northern Ca. USA
    Hey Sian,

    Yea, completely makes sense and most of your experience is the same as mine. You make another good point on the complexity of such a stealthy shape shifting virus suggesting it's likely to have significant ability to disrupt our immune systems. I think the impact of extra hepatic effects of hcv are as much if not more destructive than hepatic decline. We are just seeing the tip of that iceberg emerging.

    I believe Ifn can trigger me/cfs, but I do question researchers claiming increased incidence of CFS post Ifn Tx because most of them don't understand the disease. Maybe I'm wrong....not important anyhow.

    Thanks for looking into the study over there for me and anything else you care to share.


  3. otterwatcher


    mid wales
    I also developed ME/Cfs post successful interferon treatment for chronic hcv in 2006/7. I am now helping another friend who is 22months post treatment and in the same boat.The research into interferon and CFS is being done by Carmine Pariante at Kings College hospital.I too know folk who have treated and feel good and those who didn't and are no longer with us.

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