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    Created in 2008, Phoenix Rising is the largest and oldest forum dedicated to furthering the understanding of, and finding treatments for, complex chronic illnesses such as chronic fatigue syndrome (ME/CFS), fibromyalgia, long COVID, postural orthostatic tachycardia syndrome (POTS), mast cell activation syndrome (MCAS), and allied diseases.

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HAVE YOU NO SENSE OF DECENCY? at CFS Central

Sushi

Moderation Resource Albuquerque
Messages
19,935
Location
Albuquerque
Mindy,

Thanks so much. You spoke for us really, really well!

From all of us who have lost the ability to articulate our situation effectively.

Sushi
 

liquid sky

Senior Member
Messages
371
Well spoken, Mindy. Thank you for laying it all out like you did. I loved that you maintained eye contact with her and got her to at least answer.

Thanks for speaking for those of us who are too sick to dream of attending their conference where they keep sweeping away.
 

jace

Off the fence
Messages
856
Location
England
It's a crazy world, where Mindy relies on the tip jar, and Trine Tsouderos has a staffer's salary :headache:
 

Nielk

Senior Member
Messages
6,970
Thank Mindy for being our voice when we are too weak to have one.
Great job!
 

LaurelW

Senior Member
Messages
643
Location
Utah
Mindy, you were hard-hitting but fair. I was really impressed at how well you named the elephant in the room.
 
Messages
49
Thanks Mindy for your superb testimony!! It was fantastic. I especially liked (and agreed with) your use of the famous quote ("have you no sense of decency....") from the Army-McCarthy hearings. It's very appropriate, considering the shameful history of CDC/NIH treatment of ME/CFS. And it's a question that needs to be repeated firmly and often, until we get the long-overdue funding and recognition and treatment that we all need.