Phoenix Rising tells QMUL: release the PACE trial data
Mark Berry, Acting CEO of Phoenix Rising, presents the Board of Directors’ open letter to Queen Mary University of London (QMUL) urging them to release the PACE trial data, and hopes that other non-UK organisations will join British charities in the same request...
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HAVE YOU NO SENSE OF DECENCY? at CFS Central

Discussion in 'Action Alerts and Advocacy' started by Mindy Kitei, May 12, 2011.

  1. Mindy Kitei

    Mindy Kitei

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    My testimony and video clip from the Chronic Fatigue Syndrome Advisory Committee meeting.

    Mindy Kitei
    CFS Central
    http://www.cfscentral.com
     
  2. Sushi

    Sushi Moderator and Senior Member Albuquerque

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    Mindy,

    Thanks so much. You spoke for us really, really well!

    From all of us who have lost the ability to articulate our situation effectively.

    Sushi
     
  3. liquid sky

    liquid sky Senior Member

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    Well spoken, Mindy. Thank you for laying it all out like you did. I loved that you maintained eye contact with her and got her to at least answer.

    Thanks for speaking for those of us who are too sick to dream of attending their conference where they keep sweeping away.
     
  4. Kati

    Kati Patient in training

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    Please consider leaving a "tip" at www.CFScentral.com in thanks and support of Mindy's work.
     
  5. jace

    jace Off the fence

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    It's a crazy world, where Mindy relies on the tip jar, and Trine Tsouderos has a staffer's salary :headache:
     
  6. floydguy

    floydguy Senior Member

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    Hi Mindy,

    Thanks for your efforts. They're appreciated!

    Floyd
     
  7. Nielk

    Nielk

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    Thank Mindy for being our voice when we are too weak to have one.
    Great job!
     
  8. LaurelW

    LaurelW Senior Member

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    Mindy, you were hard-hitting but fair. I was really impressed at how well you named the elephant in the room.
     
  9. Alexia

    Alexia Senior Member

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    Thank you Mindy for all you do for us!
     
  10. SpecialK82

    SpecialK82 Ohio, USA

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    Your testimony was riveting, you absolutely blew it away, just amazing!
     
  11. Dorothy

    Dorothy

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    Thanks Mindy for your superb testimony!! It was fantastic. I especially liked (and agreed with) your use of the famous quote ("have you no sense of decency....") from the Army-McCarthy hearings. It's very appropriate, considering the shameful history of CDC/NIH treatment of ME/CFS. And it's a question that needs to be repeated firmly and often, until we get the long-overdue funding and recognition and treatment that we all need.
     
  12. Dreambirdie

    Dreambirdie work in progress

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    BRAVO MINDY!
     

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