International ME/CFS and FM Awareness Day Is On May 12, 2018
Thomas Hennessy, Jr., selected May 12th to be our international awareness day back in 1992. He knew that May 12th had also been the birthday of Florence Nightingale. She was the English army nurse who helped to found the Red Cross as well as the first school of nursing in the world.
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Have you had to relocate due to your disability?

Discussion in 'Lifestyle Management' started by ratmom, Mar 2, 2018.

  1. ratmom

    ratmom

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    Not sure if this question falls in this category, but have you had to move due to your condition? Either to get closer to family for home care, due to costs, or to move closer to a clinic that treats you?

    We've been planning on moving out of the Seattle area for some time due to the nearly prohibitive cost of living here. With my husband's emerging condition, we are seriously considering moving closer to whichever clinic we have luck with in the next few months. Or to a cheaper part of the country with a major airport nearby. Right now, we are looking at some options in the south or Oregon/Arizona if we stay on the west coast. I don't think it's entirely negative on our end, as we were wanting a new "life adventure" of sorts anyway.

    I'm curious about your experiences.
     
    ballard likes this.
  2. ukxmrv

    ukxmrv Senior Member

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    I've moved a few times over the past 30+ years of this disease.

    I'm not sure if it is the same in the USA but in the UK cheaper areas tend to have less employment. We did one major move and then when my other-half was made redundant he couldn't get any work and we had to move yet again.

    Would love to get nearer to any clinic but nothing to really choose from around here. I did move to be closer to medical treatment 20 years ago when it was available but the high housing costs now would make that very hard.

    If we could find somewhere with employment, cheaper housing and medical care we would move there.
     
    ballard likes this.
  3. Learner1

    Learner1 Forum Support Assistant

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    I think it would be very hard to get well without regular access to excellent functional medicine doctors. Even though I see a top ME/CFS specialist out of state, it's my functional medicine doctor, who I see every 3 weeks, who optimizes my function on a day to day basis, and prescribe a nutrients, botanicals, hormones, and drugs that help me cope and do much better than I would be otherwise.

    Some parts of the US seem to lack access to this type of mecicine, which is difficult.
     
  4. caledonia

    caledonia

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    Some people are sensitive to mold (to the point where it seems to be a root cause of their ME). It has substantially helped some people to move to a cleaner location.
     
    SueJohnPat, Learner1 and ukxmrv like this.
  5. ratmom

    ratmom

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    I was actually planning on posting about this to one of the groups but got interrupted last night before I could do so. It's definitely one of our our "it wouldn't hurt to try" strategies, even though we don't feel mold sensitivity is the case with with my husband. That said, I don't think this getting dark at 4 pm for 3 months and constant rain has been very helpful for him emotionally in all this.
     
    SueJohnPat likes this.
  6. Learner1

    Learner1 Forum Support Assistant

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    Wait til summer when its daylight from 330am to 10pm.
     
    ratmom likes this.
  7. ratmom

    ratmom

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    We actually can't wait, LOL :rofl:
     
  8. Nightingale

    Nightingale Chronically Cool

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    Hi @ratmom

    I had to relocate too. I live in Australia. I was living in Melbourne and the weather really upset my condition. We had no air conditioning and it could be really super hot one day, then incredibly cold the next. I ended up moving to the Wollongong area, and the weather is much more agreeable - it doesn't fluctuate so much. There's also a really active CFS support group here, so it's been a positive move. :)

    PS: I have rats too and they're wonderful. Hope everything works out for you!
     

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