The 12th Invest in ME Conference, Part 1
OverTheHills presents the first article in a series of three about the recent 12th Invest In ME international Conference (IIMEC12) in London.
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Have you been treated with Ampligen?

Discussion in 'General Treatment' started by AndrewB, Aug 26, 2011.

  1. AndrewB

    AndrewB Senior Member

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    England, UK
    Here in the UK the drug isnt available, but i did read that 70% of ME patients responded well, and some even felt 'cured' after the full IV course.
    I did see that a study was being carried out again last month in america.
    I was wondering if anyone had taken this treatment, and what, if any benefits they had experienced.
     
  2. Tony Mach

    Tony Mach Show me the evidence.

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    Upper Palatinate, Bavaria
    As far as I know, if Ampligen helps, you need to continue to take it, so I wouldn't say it 'cures'. And being able to work full time while taking is a bit more than "feeling cured".

    Google Mary Schweitzer Ampligen, e.g.:
    http://www.cfids-me.org/marys/ampdiaries.html
    http://www.cfids-me.org/marys/ampdiaries2.html
    http://www.cfids-me.org/marys/ampcoda.html
    http://www.cfids-me.org/cfscc/amptestimony.html

    Furthermore, I suggest you read "Osler's Web", where you can find a bit about the origins of Ampligen (and more about ME/CFS).

    From what I read (and without any personal experience), I would say Ampligen is by far the best we have at the moment every other currently available treatment (regardless how good they are) pales compared to this. It is expensive and difficult to get, so for me it is nothing but a dream Personally, I will try to find a good cardiologist, find out if I have POTS/OI and if yes then try out low-dose beta-blocker or alpha-antagonists.

    Good luck to you!
     
  3. vli

    vli

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    CA
    will any of those who've been on amp chime in on this??
     
  4. AndrewB

    AndrewB Senior Member

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    England, UK
    It would be great to hear from someone who has tried it :thumbsup:
     
  5. AndrewB

    AndrewB Senior Member

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    England, UK
    Tony thanks for the links, im buy Oslers Web, im just currently reading MAGICAL MEDICINE:
    HOWTO MAKE A DISEASE DISAPPEAR, and thats a very informative read.
     
  6. Evangelina

    Evangelina

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    There are quite a few people who have tried it or are currently on it. I would direct you to the following:

    https://docs.google.com/spreadsheet...FBkSHRPdkhZblRobzVWUTZUY3JGQ0E&hl=en_US#gid=0

    I would read Kelvin Lord's Blog - it helped him greatly. His first blog entry is here:
    http://ampligen-treatment.blogspot.com/2010/01/my-ampligen-treatment-begins.html

    I would also suggest reading here: (it is old, but I have been in contact with all of the authors and found their experiences to be helpful):

    http://www.cfids-me.org/aacfs/ampligen.html

    and there are other blogs too - just google Ampligen wordpress or Ampligen blogger and they'll pop up.
     
  7. liquid sky

    liquid sky Senior Member

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    Thanks for all the links. If only they would get Ampligen approved for ME and make it available through insurance. Insurance companies pay more than $20,000/year to treat MS and RA. Just not right.
     
  8. Daffodil

    Daffodil Senior Member

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    there is a yahoo group just for ampligen experiences...just go to yahoo groups and do a search:)
     
  9. AndrewB

    AndrewB Senior Member

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    England, UK
    Thanks very much for the links everbody i will read them all and search yahoo groups too :D
     

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