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Have you been properly tested for Lyme poll?

Discussion in 'Lyme Disease and Co-Infections' started by loayachil, Jan 23, 2013.

?

Have you been tested for Lyme, its co-infections, and what was your results?

  1. I have never taken a lyme test

    26.2%
  2. I have only taken the basic lyme test and it was negative

    29.5%
  3. I have only taken the basic lyme test and it was positive

    6.6%
  4. I had a negative basic, and went for better testing (ie Igenex) and received another negative

    9.8%
  5. I had a negative basic, and went for better testing (ie Igenex) and received a positive

    26.2%
  6. I had a negative basic, and went for better testing (ie Igenex) and received a positive co-infection

    13.1%
Multiple votes are allowed.
  1. Sushi

    Sushi Moderator and Senior Member Albuquerque

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    @roxie60

    Doesn't your insurance pay for Igenex tests? Medicare pays for them.

    Also, the strain of Bartonella that some doctors are finding most often in ME/CFS patients isn't bartonella henselae, but another strain of bartonella that Igenex doesn't test for. Galaxy lab seems to have the most comprehensive bartonella testing.

    Yes, it is very frustrating and confusing!

    Sushi
     
    roxie60 likes this.
  2. vamah

    vamah Senior Member

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    Washington , DC area
    If you want to test for bartonella, the best lab is probably galaxy labs in North Carolina. The doctor who developed that test is one of the leading experts on bartonella, I can't remember his name right now. If I recall, it is pretty expensive, but igenex tests are expensive too. If the cost is about the same, I would go with the galaxy one.

    I understand your frustration with doctors' glacial pace in treating people. Do you at least have a doc who believes that chronic lyme is a real thing and will treat you for it if your test comes back positive?
     
  3. roxie60

    roxie60 Senior Member

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    Central Illinois, USA
    I would love to be able to hike again
    Here is a couple of video I thought did a great job covering Lyme and its issues (kind of dated but you will get an idea of how far we have come....or not)

    Part I

    Part II
     
  4. JT1024

    JT1024 Senior Member

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    Massachusetts
    I could not vote since the options listed did not represent my experience. When I was tested for Lyme, I was initially tested for Lyme only by Igenex. Given the results, I had additional testing for co-infections. Those results were positive for Anaplasmosis and Babesia.

    This is not surprising since my dog (my avatar) tested positive for Anaplasmosis and we were out walking in tick infested areas frequently.
     
  5. vitamink

    vitamink

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    11
    NYC
    roxie60 likes this.
  6. vamah

    vamah Senior Member

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    682
    Washington , DC area
  7. Creekee

    Creekee Senior Member

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    Arizona
    Anyone else laugh each time they read the title of this thread? What the heck is "proper" Lyme testing???
     
    taniaaust1 likes this.
  8. roxie60

    roxie60 Senior Member

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    Central Illinois, USA
    @Creekee just saw your haplotype - I am U5a1a1 ..... got to think there is some close relation? I mean compared to all the haplotypes.... cousins under the skin???
     
  9. Creekee

    Creekee Senior Member

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    Arizona
    Roxie...CUZ! How cool is that? I've so rarely come across any of our type. Is U5a1a1 your maternal haplo?

    I'll be here celebrating new family!

    :hug:
     
  10. roxie60

    roxie60 Senior Member

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    Yes, maternal
     
  11. vamah

    vamah Senior Member

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    Washington , DC area
    It is lyme testing that has very good manners and is always dressed impeccibly.
     
    taniaaust1, vitamink and roxie60 like this.
  12. roxie60

    roxie60 Senior Member

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    Central Illinois, USA
    good to see you haven't lost your sense of humor!!!
     
  13. Creekee

    Creekee Senior Member

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    Arizona
    LOL! Thanks, @vamah. Now I'm gonna laugh TWICE each time!

    :rofl::lol: :rofl::lol: :rofl::lol:
     
    vamah likes this.
  14. roxie60

    roxie60 Senior Member

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    Central Illinois, USA
    I've now added my vote. Taken basic IGenex test and it was negative
     
  15. vitamink

    vitamink

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    NYC
    so you didn't have any bands present?
     
  16. filfla4

    filfla4 Senior Member

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    Can't take the poll. I was tested by PCR (positive), confirmed by DNA sequencing. I never took a basic test.
     
  17. roxie60

    roxie60 Senior Member

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    Central Illinois, USA
    Dont know, nurse was suppose to put in mail to me this past Tuesday. I called today and she may have forgot so putting in mail again. Wondering if I should just drive there tomorrow if feel up to it and get copy. So I cant comment on bands yet. Nurse/doctor said it was negative.
     
  18. Sushi

    Sushi Moderator and Senior Member Albuquerque

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    Albuquerque
    Maybe she could fax it or scan it and email and you would get it faster and save the drive?

    Best,
    Sushi
     
  19. roxie60

    roxie60 Senior Member

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    Central Illinois, USA
    doctor doesnt allow email (might be a hospital rule, dont know). I will see how I am tomorrow and may goto the office cause at this point I still may not get it until Saturday if she put it in the mail plus no delivery Monday. And I dont have FAX setup.
     
  20. taniaaust1

    taniaaust1

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    Sth Australia
    I went throu one of the better lyme testing places (no way would I get the standard test so I paid for a better one which does find a lot of lyme in Australia where ther is supposed to be none) but had a negative result (the lyme dr still thou thought I have lyme but I wont treat lyme without some kind of positive result)
     
    roxie60 likes this.

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